A tragedy! The mother of a 13 year old with severe autism attempted to kill herself and her daughter. We are quick to think “how could a mother ever do that?” However, I recall the saying “don’t judge until you walk a mile in her shoes.” I haven’t, so I don’t judge her.
Instead I suggest that we as a community and a nation need to assure that there are programs, resources and support so that tragedies such as this don’t occur. How do we guarantee that this happens? What are the steps we should take?
- Increase awareness of the challenges parents of children with special needs may experience.
- Offer informal supports (babysit, include the child in your family activity, plan a fun excursion with the child) to give the parent a break
- Contact your legislators on behalf of children and adults with special needs and their families to secure support and funding
- Be willing to be a member of a support team to assist the parent at IEP meetings.
- Help the parent find local resources, programs and support

If you are a parent struggling with challenges of your child with special needs, don’t be afraid to reach out for help. Autism Speaks encourages caregivers to call the 24 hour hotline 1-800-273-TALK and has compiled a tool kit of resources that is available online.
It’s just as important to recognize that as a caregiver you must first take care of yourself. For some caregiver tips read my previous blog post.
Parents with children with s
pecial needs experience frustration, exhaustion and helplessness at some point but we must remember that we must always have hope. As a Catholic, I believe that God will only give us the challenges that we can handle.







adolescents and young adults with ASD. In fact, the recommendations they share would be helpful to any caregiver. Some of the recommendations include:
Ryan and I exercise before work and I exercise by myself after. I began my afternoon routine around Christmas time and found that even though I might be exhausted from a day of work, I felt much better after I exercised. What do you do to relieve your stress? I’d encourage you to share your tips and experiences so that I might share with others.
There’s still time to register for both the
event to help support the Barber National Institute and its work with children and adults with disabilities.
nd 80 have registered for the Maureen Riazzi adaptive course.
ends in the area of Beach 1 at Presque Isle State Park. This course will accommodate ambulatory participants as well as those in a wheelchair or power chair. Six obstacles will be spaced throughout the course and incorporate a variety of challenges that were developed by a team of physical therapists and educators from the Barber National Institute, fitness trainers and representatives from the disabilities community.
iReport
I frequently see requests from graduate students, hospitals and universities asking family members, children and adults with autism to consider participating in a research study. Too often the studies are being conducted in settings a distance from Erie in large cities and university centers. For that reason, our participation has typically been online questionnaires about the treatment that we use and find effective for children with autism. So whether you live in a big city or a small town, there are always opportunities to become engaged in research.
structure that are found in autism. For typical children, the number of synapses decreases as they grow older. In persons with autism, the number of synapses fails to decrease in the same way as a typical child. This is leading scientists to seek new drugs that will treat autism by restoring normal pruning of brain cell connections.
effectiveness of intensive behavioral therapy for children with autism. There is a clear consensus that early intensive intervention can significantly improve the lives of children with autism thereby saving money by promoting greater independence later in life.
School bells are ringing in most neighborhoods across the country. Yesterday was the first day of school at the Elizabeth Lee Black School. Approximately 225 children and youth, 3 – 21 years of age, came off their busses. Most were smiling, but there were a few tears of children who were experiencing their first day away from mom and dad. For some parents like myself, there is always a tinge of sadness. Friends’ children are off to college. Ryan is not.

