The 7th Annual Beast on the Bay

It is hard to believe that it has been six days since the Beast!

Ryan and his friend Logan finished in about 2 hours and 45 minutes. I was watching for them as they ran up the hill to Waldameer…the runners looked EXHAUSTED!

In past years, Ryan was still running as he came up the hill. However, this year, he and Logan were walking up with tired looks on their faces. So, I cheered them on and they ran to the wave pool and then on through the finish line. He immediately grabbed a bottle of water and an apple.

His first words were: “It definitely was harder this year. Running on the sand was really tough.” He was ready to take off, get home for his shower and go out to lunch. Of course, the wave pool and the lunch out were his two major reinforcers for doing the Beast.

Some of my take aways included:

  • Everyone from both the adaptive and full course had a contagious enthusiasm from the starting line.
  • Many, many more walkers took part this year. They told me that they wanted to support the Barber National Institute and persons with disabilities.
  • Diverse demographics were represented, of young and old and all levels of fitness.
  • Whether they were part of a team or by themselves, everyone was there to assist their fellow runners as they climbed the 30+ obstacles. It was one for all and all for one.
  • Participants on the adaptive course were thrilled to compete and were so proud and joyful to receive their medals. Many of them are still wearing the medals today at work.

The Beast is a labor-intensive event with over 400 volunteers and thousands of man/woman hours involved in the planning, organizing and constructing the course. Is it worth all that effort? I would say without a doubt, YES.

The community comes together for an event which raises awareness of persons with disabilities and their integral role in the community. It is a fund raiser, but most importantly a friend raiser. If you could see the happiness in the eyes of the participants as they complete the adaptive course, I think that you would agree with me.

It’s not too early to sign up for the 2020 Beast on the Bay. Ryan has, why not join his team?

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Back to School

I thought that I would share with you today the letter I sent home with our students the first day of school.
It summarizes many of my thoughts as I contemplate the new school year.

As I think about our first day of school, I look back to 1952 when Dr. Barber and her volunteers first opened their classroom for children with disabilities. Since then, generations of children have gone from counting blocks to employment in a diversity of fields. A lot has changed in those 68 years, but what has remained constant is our dedication to children and families.

We are educators, therapists, caregivers who are committed to instilling in our students a love of learning. This is our mission. For the last 68 years and for the next 68 years. Thank you for allowing us to be your child’s teacher.

I’m looking forward to an outstanding school year!

I know that it will be an outstanding year for our students, families and staff.
My best!


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Starting the School Year Great

I recently heard a Back-to-School ad on the TV and immediately thought, “Can it be time for this already?” Ryan graduated seven years ago, but I can still recall how I felt as July turned into August and we began the back-to-school countdown. Ryan was always very anxious (and I was, too) so I learned over the years how I could help the both of us control our worry. Perhaps some of my ideas might help you and your child.


  • If your child is entering a new school, it is helpful to set up times prior to the start of school for your child to walk through the school building and locate his or her classroom. When Ryan was transitioning to Walnut Creek Middle School, we walked through the school and located his classroom, locker, restrooms, etc. to allay his anxiety about being in a new school. We even had an album of photos of the staff with whom he would interact.
  • Schedule an appointment with the principal to allow all of you to meet and informally talk about the upcoming year. The Principal and the Walnut Creek Middle School team went to great lengths to assure a successful start for Ryan. I credit the outstanding staff for the success Ryan experienced at Walnut Creek.
  • Similarly, request a team meeting prior to the start of school. I would suggest that all the teachers who would interact with your child attend. I felt it important that not only Ryan’s classroom teacher but the ancillary staff were acquainted with Ryan and the work he was capable of doing.
  • However, the most important component was creating a handout describing what teaching methods and behavioral strategies were most successful with him. I made sure that the team understood the importance of DOC043015-04302015100234_003setting the bar high by including a sample of his best work as well as his efforts when he lacked interest in the work he was doing. I wanted to make sure they knew that he would work to the level that was expected of him.
  • Count down the days to the start of school so that your child is prepared for the transition from summer fun to school days. If you changed his or her bedtime and morning routines for the summer, readjust them a week ahead of time so that your child gets used to getting up early and starting the day in a structured way.
  • Remember, it’s also important for you to remain positive and calm. Ryan could always sense my anxiety, which in turn made him become more anxious.

I always welcome additional input from parents on what’s worked for them as well.

On another note, as some of you may know I particularly enjoy Maria Shriver’s concept of taking the month of August to step away from social media, blogging, and the digital world (as much as possible). I will resume my blogging in September! May you have a smooth and blessed start to the school year!

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Celebrating the International Day of Friendship

Did you know that July 30th marked the International Day of Friendship? I started thinking about the rationale for why the United Nations established such a day, so I did some research.

International Day of Friendship was proclaimed as a reminder to all that we should promote respect for all human rights, as well as foster a culture of peace and security through tolerance and understanding. No question about that.

Ryan Beats the Beast 2015

But, I began thinking on a smaller scale. What is the value of “friendships?” Friendships certainly have a major impact on our health and well-being. Some benefits include a boost in happiness, an increase in self-confidence and a sense of belonging.  Needless to say, friendships can also decrease stress and the risk of depression.

I then began considering children with Autism and the concept of “friendships.” Many children experience communication challenges and have trouble with social interactions. They may shy away from the simplest conversation, avoid eye contact, or appear to be “uninterested.” However, that doesn’t mean that they don’t want to have friends! They may simply lack the social skills for developing friendships.

For Ryan, establishing friends among his peers has been a significant challenge. Whether it is his speed in talking, his narrow interests, or anxiety with unfamiliar people or settings, peer friendships are very limited. However, with adults who are willing to listen to his “funny” jokes, tell him to “speak slower so I can understand you,” and actually engage him, he has friends.

So, in celebration of International Day of Friendship, I would like to thank all who have made the effort to be a friend to Ryan. You are special!

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July 26th: A Celebration of Independence

This Friday, we will celebrate a second independence day in July, one less known than the 4th. On July 26th, 1990, President George H.W. Bush signed the historic Americans with Disabilities Act (ADA), a civil rights law that prohibits discrimination against individuals with disabilities in all areas of public life, including jobs, schools, transportation, and all public and private places that are open to the community at large.

The road to the ADA was not an easy one, and those fighting for equal rights met resistance. Unfortunately, too often, irrational fears, harmful stereotypes and biased assumptions surrounded people with disabilities, blocking them from the equality that many of us take for granted today.

While many civil rights movements were happening in the 1950s and 1960s, the first major legislative effort on behalf of individuals with disabilities didn’t occur until 1973. The signing of the Rehabilitation Act prohibited discrimination on the basis of either physical or mental disability in programs conducted or funded by federal agencies. A good first step, but it still wasn’t enough.

Two years later, the Education for All Handicapped Children Act was passed, mandating the full inclusion of children with disabilities in public schools. This legislation was later renamed in 1990 the Individuals with Disabilities Education Act (IDEA).

Seventeen years after the Rehabilitation Act, the ADA was signed in 1990. The US government now identified the full inclusion and integration of people with disabilities in all levels of society. Perhaps the greatest impact was in the area of employment. Employers were now required to give all qualified individuals equal opportunity in the workforce, regardless of disability.



President Bush signs the historic ADA.

Most people aren’t aware that the Erie region was a force in securing these reforms. Dr. Gertrude Barber, as a member of President Kennedy’s commission on Mental Retardation, was involved in crafting legislation for the inclusion of persons with disabilities. In recognition of her efforts, she was invited to the White House by President George Bush to see this landmark legislation signed into law.

Yes, much has changed for children and adults with disabilities since the 50’s, but the importance and need for advocacy be it in education, employment or community life can never be forgotten.

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National Make a Difference to Children Month

When I read that July is “National Make a Difference to Children Month,” I thought back to my childhood. Who did I look up to? Certainly, my parents, but who else? As a grade school student at Villa Maria the Sisters of St. Joseph served that role. I had a piano teacher, Sister Lucille, who encouraged me to be a musician and an English teacher, Sister Eulalla, who inspired me to be a writer.

At the Elizabeth Lee Black School, we strive to make a difference for every child every day.  Many of our students see our faculty as both friends and mentors. But even if you don’t work in a school or directly with children, there are many ways to become involved and make a difference in the life of a child you know!


Giving your attention to a child can go a long way – all it takes is for one person to make a difference. Here are some ideas on how to help a child become successful:

  • Always stay positive. Lead by example and show the child to look for the bright side in any situation.
  • Help the child immerse themselves in what they love and guide them towards success.
  • Ask questions! It shows you are interested in their life and wellbeing. And in turn, take the time to truly listen to what the child is saying.
  • Encourage perseverance – a child can never receive too much positive feedback which can help them develop a “never-give-up” attitude.
  • Celebrate the strengths of the child and remove any focus on their weaknesses. They don’t need to be reminded on what may not be able to do, however sometimes they will need encouragement to discover what they can do!

There are also numerous groups, ie. Special Olympics, Big Brothers, local nonprofits and churches that can provide you with opportunities to be engaged with children.


I often think of the quote, “A hundred years from now, it will not matter the sort of house you lived in, the amount of money in your bank account, or the kind of car you drove… but the world may be different because you were important in the life of a child.”

Isn’t that what life is all about?

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Making Dreams a Reality

Did you know that yesterday was Eunice Kennedy Shriver’s birthday? She is known internationally as the woman who began Special Olympics in the late 60’s. There were 1,000 participants the first year… and today, there are over three million athletes from 150 countries!

What was the impetus to begin Special Olympics?

It all began with a phone call. In 1960, Eunice Shriver received a call from a mother who could not find a summer camp for her child with an intellectual disability. She solved this problem by beginning her own camp, “Camp Shriver” at Timberlawn, her farm in Maryland.  She would invite children with disabilities to participate in recreational activities with her children and their friends. What was most important to her was the interaction between typical children and children with special needs.

Sounds familiar?

Ten years earlier, a group of parents approached Dr. Gertrude Barber and told her that the school district would not accept their children because they had disabilities. She believed that all children must have every opportunity to develop to his or her fullest potential. And so began the Barber Center.

Two women unknown to each other, but with similar dreams. Overtime, their paths frequently crossed as they advocated for children and adults with disabilities. Because of Eunice Shriver, President John F. Kennedy established the White House Task Force on Education and Rehabilitation of the Mentally Retarded. Dr. Barber was one of twenty-five delegates nationwide who was invited to serve. This was the beginning of the national movement to serve children and adults with disabilities.

Eunice Kennedy Shriver and Gertrude Barber influenced dramatic changes in attitudes towards people with disabilities through legislation, education and public awareness. Certainly, they are two women who changed our world for the better.

Eunice Kennedy Shriver

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