Dear Great Teachers…

SecEdIt’s that time of year.  Our school children are being sent into the hands of someone else to be cared for, fed, bandaged when injured and instructed.  They are handed over entirely.  It is not a parent, a grandparent, a relative or a friend.

It is a teacher.

Today I’d like to tell you about and say ‘thank you’ to one of our school teachers:

Denise Stoutamyer

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Denise Stoutamyer

Denise is a Special Education teacher in the Elizabeth Lee Black School. In the eight years that she has been with our school, she has distinguished herself by her unwavering commitment to students ages 3-5 in an Early Intervention Specialized Preschool Class.

Denise is able to recognize, with an uncanny ability, the needs, desires and skills of each of her students. She creates a safe and stimulating environment conducive to being curious and learning. Denise has a positive approach to resolving behavioral challenges, is dynamic, creative, and a consummate professional.  When not in the classroom you’re sure to find her with her students on some adventure, such as a scavenger hunt through the school or a search for dinosaurs.  Denise is achieving great success with our preschoolers. She exhibits great leadership and dedication to all whose lives she has touched.

20130623-202949The ELBS has fabulous faculty!  I can’t wait to tell you about them throughout the year. In the meantime, I thank them and all teachers nationwide who dedicate their lives to gentle souls, develop the minds of our children & make dreams come true!

I hope that you all continue to grow as your students do this year.  In the words of ELBS friend and supporter Jim Dible, “We cannot be what we need to be by remaining where we are.”

May your school year be fun, with moments of peace and overflowing with thanks!

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Start the School Year with a ‘Thank You’

 Child-Thank-YouAs I await the sounds of the students walking our halls and the artwork to drape the walls, I’m thinking of our faculty and staff returning today preparing for a new school year.

We are so fortunate to have such a fabulous faculty and staff and I want to take time this week to highlight a few of them in the blog but thank all of them here and throughout the nation. Many times we send a thank you to faculty and staff at the end of the year.  Let’s start the school year with a “thank you!”

Chris Gross

Chris Gross, PT, MS

Thank you Chris Gross!  Christina (Chris) Gross is a Physical Therapist in the Elizabeth Lee Black School.   A faculty member since 2007, Chris is the consummate professional.  She utilizes her full range of experience to address the individual needs of each student.  Chris partners with students, teachers and parents to set realistic goals and provides education at each step of her treatment to assure maximum benefit is achieved.

SONY DSCChris has a vision of inclusion which has led to many opportunities for our school students.  Through her initiative came the development of the adapted bicycling program and interactive iBook, Adapted Bicycling (available on iTunes).  She actively pursued grants that have enabled us to develop a fitness room, purchase gait trainers and specialized equipment and seating.  Chris also worked to create an adaptive Barber Beast obstacle course for students to be included in the Beat-the-Beast challenge.

I’m so grateful for all that Chris does for the students and look forward to her continued efforts this year.  My hope is that you have a faculty member like Chris. One who continues to surpass expectations with a positive attitude, vision & compassion.  And I hope that you too will begin the school year with thanks!

Chris earned a Bachelor of Science in Physical Therapy and a Master’s of Science specializing in neuro-rehabilitation from Daemen College. She is certified in Neuro-Development Treatment (NDT) for adult rehabilitation.

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Now & Then: Ryan’s Favorite Summer Activities

19 summers (and even more activities later), Ryan’s summer activities were always action filled. Whether kayaking, golfing or at the beach Ryan remains true to his adventurous spirit!

front paddeling

Kayaking on the shores of Lake Erie (Summer 2013) He still loves the water…

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T-time on the golf course….

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Driving the ball 150 yards! (Summer 2013)

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Ryan always loved golf! (practicing his swing age 2)

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Running along the beach is always a favorite (2011)

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Time at the beach (1 year old) he always adored.

 

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Ryan LOVING the water at our home

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And swimming at the BNI

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10 Days and Counting

Ryan on the first day of school

A new school year is at hand. It is hard to believe, but there are only 10 days left of summer vacation before school starts. Backpacks are about to replace beach bag,s and sandals are being swapped out for sneakers. For both parents and children, the start of a new school year can bring excitement and nervousness. I remember feeling both on Ryan’s first day of kindergarten at Grandview Elementary School.

As we stood on the steps waiting for the bus, Ryan all decked out in his “first day of school outfit,” thoughts drifted through my mind: “How will he adjust? Will the teacher understand him? I can’t believe he’s off to school. He’s growing so fast!” I know many parents share similar thoughts.

The new school year may also produce flutters of apprehension for the child as they wonder: “Will my new teacher like me? Will I be able to find my locker or classrooms? Will I have any friends in my class?”

Ryan asked me “How long will I be in school? Will you be home after school?” He seemed very comfortable when he told me, “Mom, Ms. Conti will be my teacher.” And “I’m a big boy now since I’m in kindergarten.”

Switching from the laid-back fun in the sun of summer to rules, homework and routines can be a big jump for parents and children alike. But, with a little preparation and the right attitude, it can be the start of another successful year.

School bells no longer ring for Ryan, however, he continues with new “first days.”  I am proud to say that he began a new job, working Tuesday mornings at Bello’s while and continuing his work at the Crime Lab. He is buffing all their floors, a job that he is both proud of and highly successful.  What more can a parent ask?

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Calling All Shoppers!

Couple-After-Shopping It’s that time of year, back to school and end-of-summer sales! Did you know that you can shop, save, and give all at once? “Shop for a Cause” is a national event that takes place on Saturday, August 24th at Macy’s stores nationwide. So why participate?

Four reasons to Shop for a Cause:

  • If you’re like me, shopping is fun–a relaxing time away from the daily routine.
  • You’re a fashionista who thrives on sales.
  • It’s back to school time, and you can save on new clothes, shoes or supplies for the kids.
  • Support children with disabilities in a simple, fun way.

How to give back?
Simply purchase a $5 savings pass (at the BNI) and our school keeps 100% of the proceeds from the sales of the passes. And when you shop on the 24th you can enter to win a $500 Macy’s gift card.

Where to get passes?
You can purchase your $5 shopping pass by visiting the BNI or mail us a check and we’ll macys-shop-for-causesend you the pass. Contact the school office at 878-4052 or mail your check to:

Shopping  Pass
c/o Elizabeth Lee Black School
100 Barber Place
Erie, PA 16507

Join me in the “Magic” of giving back! See you at Macy’s.

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Best Buddies: A Student’s View

best buddies

I had the privilege to chat with Joe about his experience at the Best Buddies Leadership conference and couldn’t wait to share my interview with him. I hope you are as encouraged by him as I am.

How was the conference?

“Awesome. Best Buddies has so much support nationally and internationally; the magnitude is amazing. 52 countries participated and 1,800 kids attended (University of Indiana). The key note speaker was Lauren Potter, one of the stars of the show Glee. She has Down Syndrome. She said that all her life she dreamt of being an actress, and everyone told her she couldn’t do it. She said ‘Look at me now, I’m on a hit show. So to those who say you can’t, you can!’  She inspired us to do what we dream and she’s an inspiration to kids with disabilities. Amazing!”

Why Best Buddies?

“When I would see the kids in the life-skills class at school (McDowell) I noticed they had no friends outside of class. It didn’t seem right. But, before that spending time at the BNI and seeing how kids with disabilities just wanted friends or to be included and how simply listening to their story made them feel valuable. Plus, spending time with Ryan. Ryan wants a friend and he’s taught me a lot. Honestly, everyone wants friends or to be included. Why not work with an organization that focuses on friendships especially for kids who are overlooked as “worthy” friends just because they have a disability.”

Tell me about your chapter at McDowell:

“This is the first Best Buddies Chapter in Northwest PA and the only one in the area. The closest chapter to us is in Pittsburgh. We are a pilot site. If this works, then Best Buddies would expand to other schools.”

You start your junior year this fall as the Chapter President. What are your goals for the year?

“Well, currently we have 19 kids in the chapter. Our official match (when we are paired with a buddy) happens in September. I’m looking forward to that happening first. Second is to increase awareness, especially with the Spread the Word to End the “R” Word campaign at McDowell. Third, I’d like to have a combined party with another group in school, like the Spanish club. We could partner together which would integrate students meeting each other  in a fun way.”

What, if anything, did you learn about advocacy?

“Advocating is the core. It’s giving a voice to all kids with disabilities, showing typical kids it’s ok to be friends and, ultimately, being a friend and not an enemy.”

Being a buddy is all about giving back. Tell me what you get in return.

“The biggest reward is simply the excitement on my buddy’s face when I walk in the room and say hi to him. Just being there, with him, treating him as a person and seeing his face light up…amazing.”

What’s the biggest hurdle for students or kids who don’t volunteer to overcome?

“I think most high school students don’t know how hard and different school is for someone with a disability, whether physical or intellectual. Helping typical kids see life through another’s eye through something like being a friend is the biggest challenge. But once they do, they get an amazing friend and the student with a disability gets a true friend, value and acceptance to be their self.”

What’s a challenge for your chapter?

“Fundraising. I learned a lot of good ideas for fundraising and advocacy from the conference. Fundraising is hard, especially when there are so many good organizations out there. But, doing a Friendship Walk in Erie is one idea. The Friendship Walk is one of Best Buddies most well-known fundraisers. So I’d like to work to start one here in Erie. Doing a “Wing-Off” where it’s teachers vs. students in a chicken wing eating competition and donations are how you vote.”

What can our community do to support you and your schoolmates?

“In order for us as students to make a difference we need community members and leaders to support us by helping us spread the word. They can also volunteer to donate food, let us take the group bowling for free or donate transportation for us to attend the Best Buddies Ball in Pittsburgh. This is the biggest event of the year. It’s like a prom for kids with disabilities and their buddies. It would be amazing if we could attend that event! But, our biggest need is an advisory board. These would be 12 community members or leaders who would help us with advocacy and fundraising. We need the advisory board to help establish us in Erie.”

Tell me your long term goals.

“First to have a lifelong friend. Second is to attend college and hopefully there is a Best Buddies chapter there to continue the streak. Ultimately, either through law or other options, I want to advocate for those with disabilities. I want to do something with my life that makes a difference for them.”

Joe and his friends are leading the charge for our community. They are the change agents we need for the future of children and adults with disabilities. Joe saw something that didn’t seem right and is doing something about it. He sought answers to make something better for someone else even though it’s hard work.  He reminds us, as Lauren Potter reminded him, “To those who say you can’t — You can!”

You can support the Best Buddies chapter by contacting Joe at JBPINTO77@GMAIL.COM

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The 7 Minute Difference

7Did you know that over the next decade, more than 500,000 persons with autism will become adults? And, did you know that 80% of adults with autism younger than 30 years of age reside at home?

Talk to any parent/caregiver and you’ll quickly learn that finding housing supports for adults with ASD is extremely challenging and in many cases impossible. I recognize this challenge as Ryan is 19 and completed high school. I also know that I’m very fortunate to have a great group of young men who work with Ryan at home and that this doesn’t hold true for most families. I wish it did.

Every day I see and talk to parents/caregivers whose children are aging out of the school system. They are worried about what the future will bring.  For this reason I see the importance of speaking out and advocating for all families/caregivers and joining with Autism Speaks as they lead the charge.

How are they doing this?

Autism Speaks is asking both persons with autism 14 years or older, as well parents/caregivers of persons with autism, to complete a survey. This simple seven minute survey asks you what you think your child will need when he or she turns 21 years old.  This data will assist in establishing a national strategic plan for housing. Autism Speaks hopes to receive 10,000 responses by August 9th.

Another survey?

I myself have completed many over the years and wonder when the data from the surveys will become an action plan with funding attached. It is frustrating. However, unless we provide the information there is only anecdotal comments and not substantial data that the Federal Government requires.

I encourage you to complete the survey and we both can watch for the results. As a BNI friend and supporter, Jim Dible, said “We cannot be what we need to be by remaining what we are.”

Let’s join together as we move forward. Take seven minutes to make a difference.

Link to Autism Speaks survey : http://www.autismspeaks.org/housing-survey

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Preschool and the Economy: What’s the Impact on the Future?

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“Third grade reading levels and absenteeism predict, with 90% accuracy, high school drop-out rate.”

 I was startled by this statistic as I sat listening to the details at the Investing in Kids: Can Early Childhood Education Be an Economic Development? conference yesterday afternoon.  As the stats were reported, I was astounded by the impact on our children.

For instance:

  • 44 out of 50 first graders who have experienced difficulty in reading will continue to have difficulty in fourth grade
  • 30% of Erie county children are below proficient in reading Continue reading →
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Autism & The DSM-5: Doorstop or Diagnostic Tool?

DSM-IVThe definition of autism has evolved over the years. I remember teaching (many years ago) when children who are now considered on the spectrum were diagnosed as “mentally retarded with autistic tendencies”. Then DSM-IV was published in 1994, and we began using the terminology including “PDD-NOS,” “High Functioning Autism,” and “Asperger’s.” Ryan was diagnosed in1995 under this version’s criteria.

The DSM has always been considered the “go to” when diagnosing. It carries weight because it’s one benchmark people use, diagnostically and in research, to identify autism. The new version, DSM-5, streamlines autism under one single umbrella disorder, which is believed to improve the diagnosis of ASD without limiting the sensitivity of the criteria, or substantially changing the number of children being diagnosed. Also, children and adults previously diagnosed under DSM-IV criteria will continue to be eligible for services. However, concerns remain on the implementation of DSM-5.

A recent study showed that 46% of toddlers diagnosed under the new DSM criteria no longer meet the autism diagnosis. The study looked at challenging behaviors of 3,300 children ranging in age from 17-37 months. The largest group was children who didn’t meet the criteria for ASD under the new DSM.

It’s still uncertain if and/or how the new diagnostic criteria will be a doorstop or helpful diagnostic criteria. What is certain is that it will affect children, families, therapists, teachers and insurance companies. As the effect of the new criteria unfolds, I am hopeful that educators, doctors and advocates will monitor the developments closely and work to make sure children and adults on the spectrum receive all the assistance needed to live an abundant, meaningful life.

If you or your child have been diagnosed using the DSM-5, please participate in a study being conducted by Autism Speaks: http://www.autismspeaks.org/what-autism/diagnosis/dsm-5/survey/individuals

Let’s continue to make dreams come true for all of our children!

 

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Are You Going To Beat The Beast?

ImageMark your calendar for Saturday, September 7 at Presque Isle State Park for the Barber Beast on the Bay.  You may have already seen publicity for the extreme obstacle challenge for adults, BUT we also have an adapted course, and yes, this is a fun event! If you are an adult, 18 years or older, and have autism or a developmental or physical disability, you too can participate.

You can “do your own thing” to get through it; walk, run, roll through in your chair, or be pushed in a chair by your buddy. Along the mile and a half route, you will navigate over paved road, packed dirt, sandy beach, grass, and ramps. You will encounter six obstacles including a cannon ball shuttle, boat rowing, wall climbing, beach run, and our version of Misery Bay (where you’re likely to get wet!)   Continue reading →

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