Thoughtful Thursday Ideas

child and flowersBetween June and September kids can have approximately 82 days of summer vacation. How do you fill all those days? In many of my blogs I talk about keeping a schedule during holidays, vacations, and especially, during the summer.  It may seem repetitive, but it was so important for Ryan. One of the tricks I found that worked for the summer was to have a specific topic for each day and then build an activity or more around that topic. For instance, Mondays were cooking day (or as Ryan liked to call it – “cheffing”), Tuesdays we might visit the museum, photography on Wednesday, go exploring on Friday.

But, today is Thursday, and Thursdays for us were always “thankful day.” Sometimes we volunteered by weeding at Frontier Park, picked flowers in our garden to give to someone who helped us, or emailed a friend, thanking him/her for what they had done for us that week. Below are 12 thoughtful Thursday ideas to consider, Continue reading →

Posted in Uncategorized | Tagged , , , , , , , | 2 Comments

Transition Services: Moving to Multiply

The stories on research, education and support related to children with autism seem to appear daily. Awareness is growing, and so are the children. Approximately 50,000 individuals with ASD turn 18 each year in the United States. What happens when children diagnosed on the autism spectrum grow up?

I think about this often now that Ryan is a young adult. We formally began planning for transition when he turned 14 years old.  However, even in his elementary years I focused on transition. I’d often consider: “Is this skill functional that he will be able to use as an adult?” Parents often wonder: “How will my child get assistance with employment, housing, transportation, higher education and other services?”

Since autism is a spectrum disorder, the required resources and services may range from group home living to supported living, vocational training or employment. And yet, young adults on the autistic spectrum may qualify academically for college, yet struggle with other aspects of college life. So, how do we answer the demand?

The nation is responding. The Assistance in Gaining Experience, Independence and Navigation Act of 2013, or AGE-IN Act, is a national call to action to ensure young adults are provided the resources to lead valuable, satisfying lives. U.S. Senator Bob Menendez put forth the bill. The AGE-IN Act would fund research, training, and planning for a pilot program for adult transition services. PA Governor Corbett also addressed the long term needs of adults with ASD and developmental disabilities who have aged out of the educational system.

Continue reading →

Posted in Uncategorized | Tagged , , , , , , , | 2 Comments

Anything is possible!

ImageRyan loves running! I remember his first race as little boy wondering “Is it possible for him to finish?” I wasn’t quite sure he’d cross the finish line, but he did, and I was there to greet him as he beamed a smile of accomplishment. And, as he’s grown over the years, we’ve run longer races crossing the finish line together. As I was reading a recent article about Team Hoyt (Dick, 72, and his son, Rick, 50) with a racing career spanning four decades, I was reminded: Anything is possible.

Their stats are impressive. Team Hoyt has competed in more than 1070 races including 247 Triathlons, 22 Duathlons, and 70 Marathons including 30 Boston Marathons. However, what I find truly inspiring is not the number of races, but what Rick typed to his father after the first one: “When I am running, it feels like I am not handicapped.” Continue reading →

Posted in Uncategorized | Tagged , , , , , , , , , , | 4 Comments

July 4th …with a Twist

fireworksI love fireworks! When Ryan was three, I was so excited to take him to his first fireworks display. The first blast erupted spraying the sky in magical colors that glowed in radiant hues and then… Ryan began screaming. We quickly exited and I thought, “Perhaps he is too young.” We tried again the next year, unsuccessfully. I finally “got it” and the following year we watched them, uneventfully, inside the club. As the years passed, we always went indoors before the first display.

For the child with ASD, the day is filled with events that could leave them feeling un-festive without preparation for the big day. I hope the tips I’ve collected along my journey help you prepare for the holiday so that your Fourth of July is full of fun! Continue reading →

Posted in Uncategorized | Tagged , , , , , , , , | 4 Comments

Are ALL Children Really Included?

left out child

Do you remember being in school when you and your classmates would gather in the gym for the annual class photo?  I remember all of mine (some dreaded, some not) and my son’s. This tradition of capturing the class photo continues throughout most schools today.  I haven’t thought much about class photos recently until I read a post titled “The Class Photo that Broke a Mother’s Heart.” Her son, with Spinal Muscular Atrophy and confined to a wheelchair, brought home his photo to show his mom. And, instead of sitting with his class, he is in his wheel chair sitting, as mom describes, “three feet away” from his class.  This mattered to his mom…does it matter to you?

We all hear the words: fully inclusive, least restrictive environment, regular education initiative. Children with special needs are enrolled at their neighborhood preschool, grade or high schools. In my experience, I’ve heard many parents share how pleased they are that their child will attend the same school as siblings and friends. Continue reading →

Posted in Uncategorized | Tagged , , , , , , , | 6 Comments

Kayaking, Swimming and the Behavioral Benefits

Image

Ryan, 9 years old, participating in the Kids Marathon at the peninsula. Friends, Di Di (on left) and Jeanne (on right) joined us to cheer Ryan at the finish line.

It is 80 degrees and sunny in Erie — perfect weather for outdoor sports, games or just about anything that you dreamed of doing in the midst of a snowstorm.  Summer provides a great opportunity for you and your child to be active, whether it is biking, hiking or swimming.

Yes, we all know that exercise provides health benefits; however, for children on the autism spectrum and with ADHD, there are numerous behavioral benefits. From my experience with Ryan, children who exhibit repetitive behaviors enjoy activities such as swimming and jogging because they have repeated actions.  Research shows that exercise improves attention, self control and impulsive behaviors. I have seen this firsthand with Ryan displaying decreased Continue reading →

Posted in Uncategorized | Tagged , , , , , , , | Leave a comment

Arts and Autism Spectrum Disorder

ImageArtsErie offered “Teaching Arts to Students with ASD” yesterday at the Barber National Institute in Erie, PA.

The workshop was sponsored by the Very Special Arts (VSA) and the Kennedy Center Institute. Two of our staff, Ann Ellison, MA, BCBA and Cindy Priester, OTR/L, MS offered an overview on autism with an emphasis on principles of Universal Design for Learning (UDL). Continue reading →

Posted in Uncategorized | Tagged , , , , , , | 2 Comments

Erie, Pa: On the Cutting Edge of Research in Autism

TRR_6219

I opened my Autism Spectrum Quarterly journal to see an article in the research news

Yes, this is a topic similar to the research that we started conducting at the Barber National Institute in April 2012 with Dr. Josh Diehl and the University of Notre Dame. The collaboration is a project to evaluate the effectiveness of using a robot in clinical therapy for treatment of children with autism. The study focuses on the development of communication and social skills. desk titled “Humanoid Robot Helps Train Children with Autism.”

The journal article discusses the research at Vanderbilt University, which is also using the Nao robot. To date, they have worked with six typical children and six children with autism. They have found that in both groups, the children spent more time looking at the robot than looking at the therapist.

We have had similar results so far — children with autism seem to have a natural interest in technology and are very motivated by the robot to learn new skills. The goal is to have the children generalize the communication and social responses and apply them to real-life social situations.

Josh Diehl, PhD, will be presenting our initial findings in a presentation in September inErie.  Stay tuned for further information!

Learn more about the Robot Research Project by visiting our website at http://www.barberinstitute.org/autism-insight/robot-therapy-research-project.

You can also check out a video on YouTube about our Robot Research Project.

Posted in Uncategorized | Tagged , , , , , , , , , , , , | 6 Comments

Autism from a Father’s Point of View

father and sonIn honor of Father’s Day I would like to share with you a beautiful poem by a Dad with a child with autism. http://bit.ly/13H6EwB

Posted in Uncategorized | Tagged , , , , , , , | Leave a comment

Summer Transition, Tips and Tricks

summer

Summer vacation is upon us! It’s a time to catch your breath and take a break from the daily grind. However, for parents raising children with special needs, summer time doesn’t necessarily mean “care free.”  Yes, there is no home work, and you don’t need to get your child up by 6 a.m. to meet the bus — but if you are like me, you work at making summer a fun, structured experience for your child.

A few tips and tricks I learned over the years…

  • Maintain structure throughout the day: I began from the time Ryan awakened and continued to bed time. Some families have a therapist or sitter come to the house, other children attend group childcare, and there’s also the option of a day camp. I kept the day structured by having Ryan and a sitter work on academics in the morning and afternoons were spent at the local pool, zoo or beach. Rainy days like today found him at the museum or the Tom Ridge Environmental Center.
  • Have a list with variety of options to choose from: Ryan and I always discussed what the various options were for activities. He had the opportunity to choose within the limits I set, and in that way he felt in charge.  Typically outdoor activities, such as swimming, basketball and bicycling were high on his list.
  • Explore sports and recreational lessons: Swimming is fun, and it’s worth considering swimming lessons. If you think a group swimming class might not work for your child, very often private lessons are available at your local YMCA. This was best for Ryan. At age three, Ryan spent the initial six week session with the lifeguard simply pouring water over his head. Today, he’ll swim laps for 60+ minutes.  He’s so proficient that pool time gives me the opportunity to sit back, relax and read a book. It’s possible for you too!
  • Make time for yourself: Ask your siblings, spouse or friends if they could give you a break for an hour or two once a week. This could be at your home so you can supervise what’s going on, but at the very least, it’s an hour break. It’s time for you to refresh.
  • Prepare for the next school year throughout the summer: I had pictures of Ryan’s new teachers.  We went to school, met with the principal, and located his new classrooms and locker. I hoped to decrease his anxiety by giving him concrete information about the upcoming year. I started this in June and continued until school started. He needed the time to get used to the fact that he’d be with new people in new locations, and it gave him a “heads up” as to what to expect.

I’d love to hear your tips and tricks, and I encourage you to find some time to relax and enjoy summer.  Hopefully the rain will stop, and we can enjoy the fun and sun of summer.

Posted in Uncategorized | Tagged , , , , , , , , | Leave a comment