It’s Time To Talk Turkey

Rm 119 Turkey Decoration 2013(3)There were the smells of wonderfully rich things cooking –the pervasive scent of the sizzling turkey, the touch of the linen napkins at the table, and the cool smoothness of the “twice a year China” and heavy silver settings.  Sounds were of family coming together, laughter spiking in the kitchen, grandparents fussing, cousins roughhousing and aunts catching up and gossiping.

Yet, Thanksgiving is more than just food.  It reminds us stop and ask ourselves:  What am I grateful for?  The answer will be different for each of us.  Today, it is my family, friends, community and supporters.  At other times, it may be simply having five minutes of solitude on a hectic Sunday afternoon or Ryan’s beautiful smile at the Elton John concert.

As I look back over the years, how have I expressed my gratitude?  I found my passion.  I volunteered.  I became involved in my community.  So, how do you find your passion?  Volunteer at the local shelter, a nonprofit organization or your child’s PTA.

President John F. Kennedy said, “As we express our gratitude, we must never Volunteerforget that the highest appreciation is not to utter the words, but to live by them.”

While enjoying your Thanksgiving feast and spending time with your family, remember to show your gratitude, embrace your passion and volunteer in your community.

Happy Thanksgiving!

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Ladies Only Luncheon

Thank You Photo (edited)I can’t believe it’s November already and we’re heading into our 11th Ladies Only Luncheon. It seems like it was only yesterday when a parent, Amy Borden, came to me with a project that she had chaired at her daughter’s school in Boston.  The Ladies Only Luncheon in Erie was born and has grown into one of the most notable, fabulous, and fun events of the holiday season.

Saying “thank you” to everyone who makes this event possible doesn’t seem like enough.  The hundreds of hours spent coordinating, creating, and crafting the event would not be possible if not for the enthusiastic individuals and organizations who continue to rise to the occasion each year.

A very special thank you to the The Kahkwa Club for hosting, Grise for production,  and the gift basket donors, vendors, hosts, committee members, and volunteers for their dedication, time and hard work that go into making this event such a success.

Thank you also to the corporations whose generosity ensures a sure financial success for this event:

Eriez Magnetics
Insurance Management Company
McCain Foundation
    

BKD                              Erie Bank               Hand and Upper Body
Kimkopy Printing      LECOM                  McInnes Rolled Rings
Miller Travel              Sam, Son & Co.      Sanner Office Supply
UPMC Hamot

You truly are part of making dreams come true for children and adults with disabilities.

I’ll return to blogging next week after the event.  Until then, there is still time to purchase tickets for the Diva Design, which features a stylish Coach handbag and matching wallet AND the Premiere Prize, a beautiful custom-designed pendant holding stunning genuine Amethyst and blue-green Topaz gemstones.

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How Do You Experience Gratitude?

teaching-gratitude-to-childrenGratitude.

Enter the word into your internet browser and you’ll find countless links to information on the meaning, experience, and practice of gratitude.  I admit, I’ve written many times on the practice of gratitude. The concept comes naturally this time of year, as Thanksgiving is around the corner. However, as I marinated on the concept of gratitude for this blog, I noticed three things:

  1. There isn’t a right or wrong answer for what you’re grateful for.  It’s simply what your heart tells you.
  2. Gratitude encourages giving and giving encourages more gratitude, and the circle continues.
  3. Reading stories about gratitude reminds me how powerful seeing and hearing these stories are to renewing my spirit and mind.

Number three is what I’m sharing with you today.

Walking through the school, I was drawn to a bulletin board created by our Pre-K students. The artwork is terrific, yet I was most inspired by the students’ heartfelt thankful statements.

Photo Nov 11, 9 00 47 AM“I’m thankful for my mommy.” “I’m thankful for my kitty cat.” “I’m thankful for my family.”

I read a blog entitled “Gratitude Can Fuel School Transformation.”  It’s the story of how one administrator chose to use gratitude to change her school.  Her experience was transformational. I was moved by her and hope you are too!

Recently, I watched four TedTalks to help conjure up gratitude and compassion. They are each uniquely inspiring and worth viewing.

for-my-brotherBrowsing the internet, I stumbled upon the YouTube video “For my Brother on Down Syndrome Day by Ace.” The little girl’s ability to see her brother through grateful eyes is awe-inspiring.

Experiencing gratitude through different stories is a unique way to foster the feelings of gratitude, peace and giving. What stories or photos do you have or recommend to experience gratitude?

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Autism Research: 2 Studies You May Have Missed

StoryResearch reveals how new eye-tracking technology for infants and medication for teenagers makes a difference in the diagnosis and treatment of autism

A new study, published Wednesday in the journal Nature, asked the question “Does how long an infant spend looking at other people’s eyes prove to be an early marker of autism?”

The study, although small is scope, proved to be significant because it shows for the first time the possibility of identifying signs of autism within a few months of life. Teams of investigators from Marcus Autism Center, Children’s Healthcare of Atlanta and Emory University School of Medicine collaborated on the project.  They followed 110 infants from birth to three years of age. The researchers, using specialized eye-tracking technology, traced eye movements at the rate of 30 times per second.  The children were tested 10 times between 2-24 months of age.  web-167184280

Study findings suggest that infants between 2-6 months of age who spent less time looking at people’s eyes were later diagnosed with autism (although eye contact doesn’t appear to be entirely absent.)  Also, they found that babies who showed the steepest decline in looking at people’s eyes over time went on to  develop the most severe autism.  What I found especially interesting was that this developmental difference was not present at birth but began occurring at two months of age. Investigators are working to see if the initial results withstand a larger sample size group, as well as to correlate eye-tracking measures with gene and brain growth data.

Second, and very interesting, are the initial findings of a drug trial of propranolol.  In a study presented at the 2013 Society for Nueroscience annual meeting, investigators found that the medication can improve social behavior and cognition in teenagers and young adults with high functioning autism.

Researchers tested the drug on 20 high-functioning individuals with autism between 15-30 years of age.  They recorded participants’ heart rates and perspiration to gage levels of anxiety and stress. They also engaged the participants in 1:1 conversation rating their sociability, and ability to stay on topic.  Findings suggest propranolol may improve verbal and nonverbal beresearch2havior as well as lessen stress in social situations.

As the science of autism is constantly evolving, I’m amazed at the new directions and the dedication of the researchers.  These are crucial developments because the earlier doctors can identify autism, the more effective treatments are thought to be. And, new medications on the horizon may help us solve the puzzle of autism. I encourage you to check out the new research and share your thoughts.

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“Fall Back”: How to Embrace Daylight Savings Time

Time for changeAs we were driving to the gym this morning, Ryan commented about how bright it was outside. I reminded him that we turned back the clocks Saturday night, which meant we had light earlier in the morning. (Unfortunately, night would then fall earlier.) We checked the newspaper and saw that the sun set after 5:00 p.m.  As I look back, I think of some of the unique tools that I used over the years to ease this transition and embrace “falling back.”

Develop a Tradition: Each year, Ryan and I turn back the clocks in the house and car by one hour. Also, we replace the batteries in our smoke alarms as well as our flashlights. We talk again about the importance of safety routines in the home. It’s a great opportunity to engage your child(ren) in an activity and conversation!

Do Something Special: With an extra hour on Sunday, do something special together. As a youngster, I often took Ryan to a ball park, Chuck E. Cheese or the Children’s Museum. Yesterday, we went to see the movie “Gravity.”

Embrace the Time: With the hustle and bustle of the upcoming holiday season, we all need to take a few deep breaths and refresh our minds and hearts. I encourage you to use this reminder of “falling back” in time to fall back into something you enjoy, like a hobby or coffee with a friend. You could even simply take a few moments to yourself to give thanks for all you’re grateful for.

What tips do you have for parents during the fall time change? I would love to hear your ideas.

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The 1 Action You Must Take!

Vote-blackboardVoting is the one action essential to your future and the future of your child and all children, especially those children and adults with disabilities.

Ryan and I were at the polls this morning ready to cast our vote. We arrived early to beat the lines. To my dismay, we were the only ones there other than the officials. I was happy to not wait in line, but honestly, I was shocked. “Where is everyone?” I wondered.  This may not be an election with many “hot” issues; however, every voting day is important. I believe it’s the most important day as a citizen.

Driving home, I reflected on how many changes have occurred over the years because citizens voted and elected representatives and officials who believe that individuals with disabilities were persons first and entitled to the full benefits of citizenship.

equal_rights_for_allIt was 1952 and children with special needs were not permitted to attend school. A future for them meant institutionalization. However, parents spoke up, met with legislators and the legislature passed The Mental Health/Mental Retardation Act of 1966, the first funding for children and adults with disabilities.

1968 saw the courts in PA pass the Consent Decree, which opened PA’s school to children with special needs. The education for all handicapped legislation passed in 1973 and opened all schools in the US to children with special needs. Then, in 1990, President George Bush signed into law the Americans with Disabilities Act.

Would any of this occurred if we did not have parents and supporters talking to legislators appealing for changes in the laws negatively affecting children and adults with disabilities?

President Harry S. Truman said “It’s not the hand that signs the laws that holds the destiny of America. It’s the hand that casts the ballot.” I urge all of you to vote! Encourage your friends and colleagues to get to the polls. Your vote makes a difference.

vote

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Halloween’s Sweetest Memories aren’t about Candy

Photo Oct 29, 9 28 59 AM

Ryan’s first Halloween (Superman) 1994

Each year, as the month of October draws to a close, I look forward to the spooktacular fun that fills the school!  Today’s Halloween parade brings back sweet memories of the children who have walked the parade route over the years and all of the staff and parents who join in the fun.

I’m also reminded of my Halloweens with Ryan, especially his first as Superman.

I hope you enjoy a few of the awesomely adorable, spooky, ghoulish and fun photos of my sweet Halloween memories. And I hope that your Halloween is filled to the brim with fun! Happy Halloween!

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Hallways in Hallowed decor 2013.

Shawn

Shawn (teacher) coloring the halls in fun! (2013)

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A “Super Scarey” 2013 parade.

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2013 staff dressed as “walkie-talkies”

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Halloween 2012

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2011 Parade

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2012 Parade

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2012 Parade

Ryan halloween space man

Ryan (5yrs) dressed as a spaceman.

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A Safe and Spooktacular Halloween

Halloween-candy-for-kidsHalloween is all about dressing up as scary, ghoulish, funny characters, knocking on the doors of neighbors and friends, collecting treats and relishing in the fun. However, for many children with autism spectrum disorders (ASDs), this can be a difficult and stressful time of year.

Today’s blog provides a few new suggestions for parents to implement during Halloween to create a middle ground between the predictability that kids with ASD crave and the spontaneous fun of the holiday. Also, check out my previous blog, 7 Tips for Successful Trick-or-Treating for more ideas to create a safe and fun Halloween.

  • Halloween is a great opportunity to reinforce good manners. Teaching children to be polite by waiting their turn to ring the doorbell and saying “Trick or Treat,” taking one treat  unless they are told differently, and always saying “thank you” before leaving.
  • Flashlights are a must.  Ryan carried one to help him see in the dark/dim evening. It gave him a sense of comfort and some means of control.
  • When trick or treating, take a route familiar to your child and family. Consider avoiding homes with flashing lights or loud sounds that may trigger sensory reactions. When done trick or treating, talk to your child about what fears may have arisen from what was seen or heard.
  • If your child is nonverbal or has difficulty communicating, it’s important to make sure that he or she wears an identification bracelet.
  • Another option for parents is to create a “Trick-AutismHalloween card small_001or-Treat” card. The card clearly shows your child’s disability in a nonthreatening way. These easy to print cards are an effective tool to pass out to neighbors to eliminate explanations about your child’s silence. It’s a simple way to include your child and alleviate awkward feelings for your child, yourself and neighbors. They could be edited to fit your child/family needs.

Since Ryan turned 16 years old, he has been definitely too old for trick-or-treating. However, he is a huge fan of haunted houses. He begins talking about going at the end of September and looking up online the local houses.  This year he attended three and thoroughly enjoyed every minute. Consider this option if you have a son or daughter who is an adult.

Have a safe, fun and spooktacular Halloween!

happy-halloween

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The Journey to Employment: Celebrating NDEAM

NDEAM2Mike Shultz, a former early intervention student, who attended preschool at ELBS, went on to graduate from Central High and has been employed at Plastek for one year recently shared his journey to employment.  A dream come true! He is proof of what “Because We Are EQUAL to the Task, the 2013 theme of National Disability Employment Awareness Month, echos and what individuals with disabilities already know:  They are capable employees and successful in the workplace when provided an opportunity.

Yesterday, as I stood in the Forum of the BNI, I was privileged to witness the powerful impact of what the opportunity of employment means to Mike, other employed adults and the community businesses hiring them.

The room was filled with parents, supporters, staff members, adults currently employed in the community and those participating in our Transitional Work Service program (TWS) who are in training for employment.

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Employees recognized (in no particular order) Brian Mehler, Rebeeca Tomczak, Dominic Diplacido, Mike Shultz, Andre Keys, Ryan Carey, Anthony Clark, Kimberly Bauer, Audrey Kindrick and Ikenna Davis

Each individual employed accepted an award, shared where they worked and for how long. Some of them read a letter encouraging the TWS adults by showing how it felt when they were hired for their first job. They shared how they were afraid at first, grew more confident as their job coach helped them learn the job and how much they are enjoying it now. Hearing their stories I could see the pride and self-confidence shine within each of them. What a moving experience!

The glowing letters of commendation from the companies’ owners were inspiring.  Pizza Hut, Wendy’s, Plastek Group and Bello’s Market were a few of the companies recognized for their outstanding employment practices in hiring persons with disabilities.  A tribute to them and our community!

What first began as a week of celebration expanded to the entire month of October now called National Disability Employment Awareness Month (NDEAM) sponsored by Office of Disability and Employment.  For the past 60 years the movement has grown due in large part to advocacy from individuals, parents, communities and state and Federal organizations to make certain that individuals with disabilities have the same opportunity as those without.

The Bureau of Labor Statistics reported in 2012 that 17.8 percent of persons with a disability were employed in the United States. In contrast, the employment-population ratio for persons without a disability was 63.9 percent. The unemployment rate for people with disabilities is 14.1 percent, double that of people without disabilities.

This is why we recognize NDEAM and continue our advocacy efforts.  You too can join the movement.  With courage, creativity and a willingness to value each person, employers can lead the charge in opening new doors for persons with disabilities.

I challenge you to reach out to others with this message. It’s as simple as tweeting:

  • National Disability Employment Awareness Month, what can you do?”
  • “Because we are EQUAL to the task #NDEAM”
  • “Erie, celebrate National Disability Employment Awareness Month by retweeting this message!”
  • “Do you believe we are all EQUAL? Celebrate National Disability Employment Awareness by retweeting!”
  • “A strong workforce is an inclusive workforce. What can you do?”

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UPDATE: All About Autism Introduces Revised Resources

ResourceFall brings a change in season. It’s often a time to clean, organize the garage and reorganize our wardrobe as we prepare for the winter season.  In the same spirit, I decided to revisit and update important resources for those of us who are committed to children and adults with special needs.

Below you’ll see a glimpse of some wonderful resources that I have found helpful on my journey with autism. I encourage you check out the Resources page on my blog homepage for the full list and links. You’ll find useful online communities/blogs, awesome apps, great books and more.

  1. Autism Speaks
  2. eSchool News: Technology News for Today’s K-20 Educator
  3. Noah’s Dad: A Blog About Down Syndrome
  4. Peeping Musicians app
  5. Not My Boy by Rodney Peete

I’m always looking for wonderful, quality resources and encouraging quotes. I’d love to hear what some of yours are, so please send me your favorites!

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