All About Autism

When I learned that my son Ryan was diagnosed with autism at the age of two, many things changed. I now had a better understanding of some of the behaviors that he had exhibited prior to the diagnosis. He enjoyed opening and shutting doors, whether it was the microwave, refrigerator or his closet. He would be content to do so unless interrupted. Rather than the traditional schedule for a two year old, Ryan began an intense Applied Behavior Analysis (ABA) program during the day, evenings and weekends. We knew that he would make the most progress if he was working on the same skills every waking hour. We set language, cognitive and social goals for him and always kept the bar high and encouraged him. However, I knew the dream I had for him to continue the Barber family tradition and attend Notre Dame was no longer possible.

Today, sixteen years later, he is now training with our Transitional Work Service Program at the Barber National Institute. He is very interested in landscaping and maintenance and plans to focus in these areas.  He has a strong work ethic and is already planning to get a job at the Erie County Courthouse, Police Barracks, St. Patrick’s Church and the Quinn Law Offices. He has goals. As Ryan works towards his long term vocational goals, I am reminded of how important it was that we started this transition planning when he was 13.

Through my experience both personally and professionally, I strongly encourage you to keep transition in the forefront of your child’s education. It’s never too early to consider and begin establishing IEP goals. A functional curriculum is essential for all ages. It is at the age of 13 that IEP teams need to be considering employment, post secondary education, and community living. You may be thinking that your child will not graduate until he or she is 18 or 21, so why the rush? You need all of those years to adequately prepare for what happens after graduation and secure funding. Too often, I talk with parents who expected programs for their young adult to materialize and are now dismayed that nothing is available.  Resources are available through your child’s teacher, transitional coordinator for your school, and via Autism Speaks.

When I asked Ryan how was his first day, he replied, “My first day was exciting, and I’m earning my list of job sites.” (Erie Courthouse, Police Barracks, etc.).

The initial dream of attending Notre Dame will not happen, but it has been replaced by new dreams that are now coming true.  I look forward to keeping you updated on his progress. I am so proud of Ryan and his many, many accomplishments!

Photo Credit: http://www.pncgrowupgreat.com

I’m traveling to Cleveland today to participate in the Grow Up Great Advisory Council meeting.  The Advisory Council is comprised of respected leaders within the early childhood field and provides strategic guidance to PNC on this project.

Grow Up Great is a bilingual, $350 million initiative that began in 2004 to help prepare children under age five for success in school and life.  To date, the program has served 1.5 million children throughout its footprint in 15 states and the District of Columbia.

The agenda for the two-day meeting includes topics ranging from the PNC Grow Up Great-Sesame Workshop Collaboration, Measuring and Communicating the impact of Grow Up Great. I will also be attending the opening of the PNC Fairfax Connection Program and am looking forward to sharing with you what I learn next week.

Hats off to PNC for its continued commitment to early childhood education!

I’m excited to see that Autism Speaks has launched a new Autism and Technology page. At the Barber National Institute, we have seen the impact that the effective use of technology can have for our children and adults with autism. Because technology is always changing, it’s difficult to stay up-to-date with the advances. The webpage has information on apps and webinars, as well as technology resources. You are also able to send in your questions regarding the use of technology with your child or adult. Continue reading →

Many of you have contacted me since news of the reclassification of Erie County was announced to express your concern and ask what you can do. I wanted to pass along today’s (September 18) editorial in the Erie Times-News as it clearly demonstrates the devastating effect it will have on this community and the children and adults who we serve. I encourage you to contact your legislators, Governor Corbett and the Secretary of Public Welfare. You can find their email addresses on our website.

Make sure your voice is heard!