A Visit with Santa

SONY DSCIn 2011, Susie was a 13-year-old student enrolled at the Elizabeth Lee Black School at the Barber National Institute in Erie, PA. One winter day, while chatting with her mom about the school holiday events, she mentioned that Susie had never been able to visit Santa. Over the years, her mom tried to take Susie to the mall to see Santa, but the large crowds, loud noises and waiting in line would lead to behavioral outbursts. This part of the holiday season seemed out of reach for Susie and her mom until her mom learned about a unique event. The Barber National Institute and Millcreek Mall were teaming up to provide children with special needs an opportunity to enjoy one of the holiday’s joyous memories, sitting on Santa’s lap. Continue reading

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Addressing Anxiety and ASD

It is estimated that the prevalence of anxiety in children with ASD to be 30-81% (MacNeil e al. 2009; White et al. 2009). The impact of anxiety on educational success, social participation, friendships and family members is great.  It’s fairly common for children suffering from autism to be diagnosed with anxiety. It’s a significant problem for many individuals with ASD and presents differently in each child. Some children become anxious when changes impact the expected routine. Others become anxious when they are overly stimulated. In my experience, Ryan becomes very anxious when he acknowledges that he has not followed the rules and a consequence will be occurring. Continue reading

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thanksgiving with a small “t”

The holiday season officially kicks off this week. Are you ready? It’s a busy time with the hustle and bustle of shopping, school plays, holiday parties, and family functions mixed into the “regular” schedule. It’s a season that seems to evaporate as rapidly as it descends. However, Thanksgiving is a perfect time to stop for a moment and remember to give thanks.   Continue reading

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Ladies Only Luncheon Coming Soon

A few of the 2012 Ladies Only Luncheon Committee members displaying some of the prizes

The countdown begins! We are four days away from the 10th Annual Ladies Only Luncheon, and the excitement is building.  Saturday, November 17 will be here before we know it, and I am thrilled to welcome our guests to the event.

A very special thank you to our sponsors, gift basket donors, vendors, hosts, committee members, and volunteers for the dedication, time and hard work that go into making this event such a success. You truly are part of making dreams come true for children and adults with disabilities. Continue reading

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My Hope

Remember to contact your legislators in order to advocate for individuals with disabilities.

As fast as the political campaigning began, it ended.  To be honest, I’m happy the barrage of political ads that seemed to envelope the media has ended. What a difference a few days can make.  However, even though the elections are over; our work has just begun.  There are very important issues confronting our country today, especially the fiscal cliff, which is right around the corner.  So, it’s important for us to consider the question, “Will we reach out to our legislators locally, statewide and nationally?”

As an educator, Continue reading

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Voting: All People Have a Voice

It’s Election Day!  Whether Democrat, Republican or Independent, it’s a day when our voices get to be heard as we vote in local and national races.  Ryan and I decided to vote early today with hopes of avoiding the crowds at the polling station. So, at 7:30 a.m., right after our workout, we made our way to the Millcreek Youth Association Office to cast our ballots. Even though we had to wait, I was pleased to see the large crowd of voters.

As the voting season amped up and I read more information regarding local and national candidates, I came across intriguing information regarding voting and persons Continue reading

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Artist Makes Dreams Come True for Students

Dharma doing an arm stretch in his class’s exercise video session.

Disney has Mickey and Pixar may have Nemo, but only the Elizabeth Lee Black School at the Barber National Institute in Erie, PA has Dharma, Angelina and Mackenzie.  These are just a few of the 60 students who became stars using stop motion animation and other computer generated techniques led by artist Jude Shingle as part of the Artist-in-Residence program.  

Jude holds a BA in studio Continue reading

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Emergency Preparation: Are We Ready?

Candles and batteries: Not the only materials needed when preparing for a hurricane, especially if you are the parent of a child with autism.

The wind whipped through the trees, rain pelted the windows and I wondered how prepared our families are for an unusual weather occurrence. Living in Erie, PA, we seldom consider disaster preparedness. Snow storms dumping two feet of snow are not rare; however, as Hurricane Sandy advanced up the east coast, I began to consider what I should be doing to prepare. Continue reading

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7 Tips for Successful Trick-or-Treating

It’s a sunny, warm Thursday in Erie today. Looking out the window, one would guess that the Fourth of July, not Halloween, is approaching.  However, as I walk though the school I’m reminded that this is October.

Our school is decorated in spooktacular fun with goblins, pumpkins and spiders while Happy Halloween banners drape the halls. As the school prepares for the annual Halloween Parade, I’m reminded of how important preparation is for this holiday. I’m also reminded of one of Ryan’s favorite Halloween costumes…Big Bird!

It’s important to plan for Halloween as this is a change in routine and as we all know, change has the potential to become a challenging situation. Below are some tips that I learned after both positive and challenging trick-or-treating evenings with my son.

  • Read a few books about Halloween activities, trick-or-treating, carving pumpkins and wearing costumes. This will prepare your child for the evening.
  • Go costume shopping with your child:

– It’s always best to choose one that reflects his/ her interests. When Ryan was a preschooler, he was Thomas the Train and Superman, but as he got older, he chose to be a ghost for a number of years.

– Practice wearing the costume. If a costume doesn’t work, ask if he/she would rather wear face paint, a hat or a mask.

– No costume is okay too.

  • Keep it short:

– After experiencing a challenging Halloween, I decided to limit our trick-or-treating to two homes.  Ryan and I only visited my sister Mary Beth and friend Jeanne. This kept it short and sweet and avoided the candy battle.

– Know your limits. As soon as you see your child becoming over-stimulated or agitated, it’s time to go home.  It’s okay the end the evening.

  • Create a schedule:

– Write down exactly what will happen. Our evening looked like this: Eat dinner, dress in costume, review safety rules, trick-or-treat at Mary Beth’s and Jeanne’s houses, return home and enjoy the treats

  • Role play for the evening: This provides a structure and outlines specific behavior for trick-or-treating.

– Ring the doorbell

– Say “trick-or-treat” and/or hold up your trick-or-treat bag

– Let the neighbor put the treat in your bag

– Say or sign “thank you”

  • Dietary restrictions:

– A special diet requires special treats. What worked best for Ryan was fruit and money. I alerted my sister and friend to this so that they could be prepared. If you do go door-to-door, have some appropriate treats for your child at home to quickly exchange for what he/she collected.

  • Safety rules: Review the safety rules with your child. Some that I always stressed were:

– Hold hands or walk side by side

– No running

– Stay with mom

*A great safety tip is to have your child wear a glow necklace and/or bracelet.*

Keep in mind that there are alternatives to trick-or-treating. If you know your child’s not ready, it’s just as fun to stay home and pass out treats, read a story or watch a movie. Halloween comes once a year, so have fun, be creative, take pictures, laugh and enjoy!

 

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The Power of a Word

Have you ever used the word “retarded” to describe a child or an adult that you know? Have you ever heard someone else use it as slang in conversation?

When I was teaching in the 80s, special education was thought to be teaching the “retards.” It was common language that wasn’t meant as derogatory, it was just considered a statement of fact.

Continue reading

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