“Fall Back”: How to Embrace Daylight Savings Time

Time for changeAs we were driving to the gym this morning, Ryan commented about how bright it was outside. I reminded him that we turned back the clocks Saturday night, which meant we had light earlier in the morning. (Unfortunately, night would then fall earlier.) We checked the newspaper and saw that the sun set after 5:00 p.m.  As I look back, I think of some of the unique tools that I used over the years to ease this transition and embrace “falling back.”

Develop a Tradition: Each year, Ryan and I turn back the clocks in the house and car by one hour. Also, we replace the batteries in our smoke alarms as well as our flashlights. We talk again about the importance of safety routines in the home. It’s a great opportunity to engage your child(ren) in an activity and conversation!

Do Something Special: With an extra hour on Sunday, do something special together. As a youngster, I often took Ryan to a ball park, Chuck E. Cheese or the Children’s Museum. Yesterday, we went to see the movie “Gravity.”

Embrace the Time: With the hustle and bustle of the upcoming holiday season, we all need to take a few deep breaths and refresh our minds and hearts. I encourage you to use this reminder of “falling back” in time to fall back into something you enjoy, like a hobby or coffee with a friend. You could even simply take a few moments to yourself to give thanks for all you’re grateful for.

What tips do you have for parents during the fall time change? I would love to hear your ideas.

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The 1 Action You Must Take!

Vote-blackboardVoting is the one action essential to your future and the future of your child and all children, especially those children and adults with disabilities.

Ryan and I were at the polls this morning ready to cast our vote. We arrived early to beat the lines. To my dismay, we were the only ones there other than the officials. I was happy to not wait in line, but honestly, I was shocked. “Where is everyone?” I wondered.  This may not be an election with many “hot” issues; however, every voting day is important. I believe it’s the most important day as a citizen.

Driving home, I reflected on how many changes have occurred over the years because citizens voted and elected representatives and officials who believe that individuals with disabilities were persons first and entitled to the full benefits of citizenship.

equal_rights_for_allIt was 1952 and children with special needs were not permitted to attend school. A future for them meant institutionalization. However, parents spoke up, met with legislators and the legislature passed The Mental Health/Mental Retardation Act of 1966, the first funding for children and adults with disabilities.

1968 saw the courts in PA pass the Consent Decree, which opened PA’s school to children with special needs. The education for all handicapped legislation passed in 1973 and opened all schools in the US to children with special needs. Then, in 1990, President George Bush signed into law the Americans with Disabilities Act.

Would any of this occurred if we did not have parents and supporters talking to legislators appealing for changes in the laws negatively affecting children and adults with disabilities?

President Harry S. Truman said “It’s not the hand that signs the laws that holds the destiny of America. It’s the hand that casts the ballot.” I urge all of you to vote! Encourage your friends and colleagues to get to the polls. Your vote makes a difference.

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Halloween’s Sweetest Memories aren’t about Candy

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Ryan’s first Halloween (Superman) 1994

Each year, as the month of October draws to a close, I look forward to the spooktacular fun that fills the school!  Today’s Halloween parade brings back sweet memories of the children who have walked the parade route over the years and all of the staff and parents who join in the fun.

I’m also reminded of my Halloweens with Ryan, especially his first as Superman.

I hope you enjoy a few of the awesomely adorable, spooky, ghoulish and fun photos of my sweet Halloween memories. And I hope that your Halloween is filled to the brim with fun! Happy Halloween!

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Hallways in Hallowed decor 2013.

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Shawn (teacher) coloring the halls in fun! (2013)

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A “Super Scarey” 2013 parade.

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2013 staff dressed as “walkie-talkies”

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Halloween 2012

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2011 Parade

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2012 Parade

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2012 Parade

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Ryan (5yrs) dressed as a spaceman.

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A Safe and Spooktacular Halloween

Halloween-candy-for-kidsHalloween is all about dressing up as scary, ghoulish, funny characters, knocking on the doors of neighbors and friends, collecting treats and relishing in the fun. However, for many children with autism spectrum disorders (ASDs), this can be a difficult and stressful time of year.

Today’s blog provides a few new suggestions for parents to implement during Halloween to create a middle ground between the predictability that kids with ASD crave and the spontaneous fun of the holiday. Also, check out my previous blog, 7 Tips for Successful Trick-or-Treating for more ideas to create a safe and fun Halloween.

  • Halloween is a great opportunity to reinforce good manners. Teaching children to be polite by waiting their turn to ring the doorbell and saying “Trick or Treat,” taking one treat  unless they are told differently, and always saying “thank you” before leaving.
  • Flashlights are a must.  Ryan carried one to help him see in the dark/dim evening. It gave him a sense of comfort and some means of control.
  • When trick or treating, take a route familiar to your child and family. Consider avoiding homes with flashing lights or loud sounds that may trigger sensory reactions. When done trick or treating, talk to your child about what fears may have arisen from what was seen or heard.
  • If your child is nonverbal or has difficulty communicating, it’s important to make sure that he or she wears an identification bracelet.
  • Another option for parents is to create a “Trick-AutismHalloween card small_001or-Treat” card. The card clearly shows your child’s disability in a nonthreatening way. These easy to print cards are an effective tool to pass out to neighbors to eliminate explanations about your child’s silence. It’s a simple way to include your child and alleviate awkward feelings for your child, yourself and neighbors. They could be edited to fit your child/family needs.

Since Ryan turned 16 years old, he has been definitely too old for trick-or-treating. However, he is a huge fan of haunted houses. He begins talking about going at the end of September and looking up online the local houses.  This year he attended three and thoroughly enjoyed every minute. Consider this option if you have a son or daughter who is an adult.

Have a safe, fun and spooktacular Halloween!

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The Journey to Employment: Celebrating NDEAM

NDEAM2Mike Shultz, a former early intervention student, who attended preschool at ELBS, went on to graduate from Central High and has been employed at Plastek for one year recently shared his journey to employment.  A dream come true! He is proof of what “Because We Are EQUAL to the Task, the 2013 theme of National Disability Employment Awareness Month, echos and what individuals with disabilities already know:  They are capable employees and successful in the workplace when provided an opportunity.

Yesterday, as I stood in the Forum of the BNI, I was privileged to witness the powerful impact of what the opportunity of employment means to Mike, other employed adults and the community businesses hiring them.

The room was filled with parents, supporters, staff members, adults currently employed in the community and those participating in our Transitional Work Service program (TWS) who are in training for employment.

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Employees recognized (in no particular order) Brian Mehler, Rebeeca Tomczak, Dominic Diplacido, Mike Shultz, Andre Keys, Ryan Carey, Anthony Clark, Kimberly Bauer, Audrey Kindrick and Ikenna Davis

Each individual employed accepted an award, shared where they worked and for how long. Some of them read a letter encouraging the TWS adults by showing how it felt when they were hired for their first job. They shared how they were afraid at first, grew more confident as their job coach helped them learn the job and how much they are enjoying it now. Hearing their stories I could see the pride and self-confidence shine within each of them. What a moving experience!

The glowing letters of commendation from the companies’ owners were inspiring.  Pizza Hut, Wendy’s, Plastek Group and Bello’s Market were a few of the companies recognized for their outstanding employment practices in hiring persons with disabilities.  A tribute to them and our community!

What first began as a week of celebration expanded to the entire month of October now called National Disability Employment Awareness Month (NDEAM) sponsored by Office of Disability and Employment.  For the past 60 years the movement has grown due in large part to advocacy from individuals, parents, communities and state and Federal organizations to make certain that individuals with disabilities have the same opportunity as those without.

The Bureau of Labor Statistics reported in 2012 that 17.8 percent of persons with a disability were employed in the United States. In contrast, the employment-population ratio for persons without a disability was 63.9 percent. The unemployment rate for people with disabilities is 14.1 percent, double that of people without disabilities.

This is why we recognize NDEAM and continue our advocacy efforts.  You too can join the movement.  With courage, creativity and a willingness to value each person, employers can lead the charge in opening new doors for persons with disabilities.

I challenge you to reach out to others with this message. It’s as simple as tweeting:

  • National Disability Employment Awareness Month, what can you do?”
  • “Because we are EQUAL to the task #NDEAM”
  • “Erie, celebrate National Disability Employment Awareness Month by retweeting this message!”
  • “Do you believe we are all EQUAL? Celebrate National Disability Employment Awareness by retweeting!”
  • “A strong workforce is an inclusive workforce. What can you do?”

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UPDATE: All About Autism Introduces Revised Resources

ResourceFall brings a change in season. It’s often a time to clean, organize the garage and reorganize our wardrobe as we prepare for the winter season.  In the same spirit, I decided to revisit and update important resources for those of us who are committed to children and adults with special needs.

Below you’ll see a glimpse of some wonderful resources that I have found helpful on my journey with autism. I encourage you check out the Resources page on my blog homepage for the full list and links. You’ll find useful online communities/blogs, awesome apps, great books and more.

  1. Autism Speaks
  2. eSchool News: Technology News for Today’s K-20 Educator
  3. Noah’s Dad: A Blog About Down Syndrome
  4. Peeping Musicians app
  5. Not My Boy by Rodney Peete

I’m always looking for wonderful, quality resources and encouraging quotes. I’d love to hear what some of yours are, so please send me your favorites!

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The Search for Avonte

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Avonte Oquendo
Photo from Autism Speaks

The disappearance of young Avonte Oquendo in New York City (NYC) reminds me again of this critical issue for many, many parents of children with autism and developmental disabilities.

I recall Ryan’s most serious incident when he wandered off as we shopped in the Notre Dame Book Store. Ryan was missing for only five minutes, but those were the longest five minutes of my life. I felt a surge panic, but had to remain focused to begin finding him. My story and helpful hints are in Safety Measures for a Wandering Child.

Today, the search for Avonte continues. I’m sad for his family as I understand the waves of panic, hope, and fear that they are feeling, although Ryan was gone no longer than five minutes. I’m also proud of the NYC community supporting his family.  New York has come together in the quest to find Avonte. They are doing everything right. The man power being used for searching, focusing on his interests (trains) for that search, and being willing to stop the subway in the search is an amazing and profound example for all communities.

Social media is keeping the search efforts at the forefront of everyone’s mind.  The Facebook page is Bring Avonte Home.

What can you do?

If you are in the NYC area or are a local Erie resident and hear of a similar story, I encourage you to act using these three steps:

  1. Follow the child and call the police.
  2. Don’t approach the child. You may be inclined to do so, however this might encourage the child to run.
  3. Trust your gut that it might be the child, keep following, and stay on the phone with the police.

It only takes one second for a child to wander. The statistics in my post Children with ASD and Wandering: A Compelling Research Study show that often, for children with special needs, it is not a deliberate act of choosing to run but simply that the child sees something that catches his or her interest and wanders off to look.

This event also reminds me of the importance of registering a child and or family with Safetown.org.  I’d strongly encourage everyone to investigate whether your community is registered with Safetown.org. The form itself only takes a few minutes to complete and it could save your child’s life!

Prayers go out to Avonte, his family, and the NYC community as the search continues.

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Our Students Get Giving

child-donationEmma – “Collecting pennies made me happy.

Jimmy N. – “Perfect. Counting money made me feel good. I’d like to do it again.

Kayla – Smiling she said “It felt good.

Jimmy S. – “Great. It was a pretty good cause. Thought it might have more potential. Definitely want to do it again.

Mackenzie – “Liked it when I counted the pennies.

What do the students feel so good about? They spent the month of September and part of October, every day, collecting change for a cause and last night we had the honor of presenting the results of their hard work to the Kanzius Foundation.

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Caitlyn Bish and Emma Hickman (2 students) Nina Wolfarth (ELBS Early Care Coordinator) and myself presenting the check to the Kanzius Research Foundation during the 2013 telethon.

$1,100.00 was raised from pennies, dimes, quarters and dollars donated by ELBS students, faculty and the BNI staff.  This year the students increased the donation by $500.00! A goal the children and the faculty were ecstatic to achieve. I was thrilled too and am excited to see the meaning of giving developing in our children.

As Josh said “It felt really nice. It’s a really great cause. Raising money to help other kids is a really great thing to do.” He is so right.

We are very fortunate to have so many friends within the Erie community who support the BNI cause. That’s why it’s so important for us to give back to the community and what better way than the Kanzius Fundraiser?

I was often asked, during the penny drive, if the children understood the concept of giving. Yes they did. Every day they looked forward to collecting change and counting the collection. The word GIVE was the most used word last month by our students.

The penny drive was our most recent act of giving. However, giving is a lesson that is taught daily by being kind with our words, art, time, and friendships. Random acts of kindness are a great thing, but regular acts of kindness are even better! Our students are a role model for me and our community. They inspire us to get giving every day.

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Artistic Adventures in Digital Media for Autism and Special Needs

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Jude Shingle: arts educator, filmmaker, and illustrator.

Jude Shingle returns as our Artist in Residence for the ArtsErie Long Term Artist in Residency. This time the mission is bigger. He is up for the challenge and we are excited!

An Artist in Residency program positions artists outside of their everyday life allowing them to create work inspired by their temporary surroundings. I believe it also benefits the host institution, community at large, and individuals who come alongside the artist. We at the ELBS have seen the extraordinary outcomes of hosting an artist and are thrilled to welcome back Jude!

We have 2 goals: 1) collaborate with the teachers and students in each classroom to create a multimedia publication (digital book, movie, animation) that reinforces or expands on concepts in the classroom. And 2) train teachers and administrators to use the new technologies in their classrooms to create these publications.

dsc01563This is a whole school and community collaboration. The IT and Behavior departments, teachers, staff and ArtsErie working in tandem to bring the best of digital media to the ELBS.

It’s a win/win not just for the BNI community and the artist but for parents, teachers, and community organizations.

Greater still, there is more to come! We are creating a webinar and conference presentation to share what we’ve learned and our plans for the future. My hope is that participants will: See one. Do one. Teach one.

I am so grateful to the Erie community specifically, First Niagara, ArtsErie and the artists who have made this possible. Let the artistic adventures in digital media begin!

Artist Residencies are made possible through the Arts in Education Partnership of the Pennsylvania Council on the Arts.

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Music: How One Community is Teaching Children with ASD and Who’s Really Benefiting?

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Steve Weiser of the Erie Chamber Orchestra teaching our students rhythm

The power of music affects us all and has long appealed to our emotions, but does music have the power to transform? There have been many studies showing that it might for children on the spectrum. Today,I don’t want to focus on those studies, although I find the research important. Rather,I want to share with you how one community, our Erie community, is bringing repetition, rhythm, melody, tone, duration, volume– all the facets of music—to work  separately and together for our students.

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Erie Chamber Orchestra violinist teaching our students to “feel” the music

The gentle sounds of violins from the Erie Chamber Orchestra penetrate the school walls. The rhythm of drums and bellows of accordions ripple through the floors, thanks to The Bengsons and the Mercyhurst University Artist in Residence program. And, the bright, clear voices of the Young People’s Chorus singing with our students soar through the air. Music has flooded our school and our students are thriving!

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Indie Rock artist Shaun Bengson helping students explore new instruments.

Indie rock artist Shaun Bengson visited yesterday, thanks to an artist in residence program with Mercyhurst University. Our students sat in rapt attention for a 45-minute lesson with him. They sang songs together; the children waited their turn and without prompting clapped for each other after each turn. When Shaun asked “what instrument has strings?” the students said “violins” and motioned how to use the violin. They remembered and mentioned the visit from the Erie Chamber Orchestra violinists from last Friday.

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The Young People’s Chorus of Erie and our students letting their heart sing!

Yes, our children are benefiting. To be able to listen and appreciate, sing or participate in music-making is interactive and enjoyable. I believe that’s what school should be like for all children. I also believe it’s not possible without the collaboration of community organizations.

Alyson Amendola and the YPC of Erie, Steve Weiser and the Erie Chamber Orchestra, and The Bengsons are enhancing quality of life and raising public awareness through autism-friendly, interactive music developed specifically for students with autism. I am so grateful to the Erie music community and exited to see how this grows and has an impact not only for our students but the community as a whole.

Does music benefit children with ASD? Yes it does. And, music benefits a community. It’s a win/win.

Tune in on Thursday and I’ll share the happenings of Jude Shingle, Artist in Residence and ArtsErie.

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