Have You Volunteered Lately?

I would like to share a few thoughts about the importance of volunteerism in our society today.  The need for services for children and adults with autism is growing exponentially while funding is significantly declining.  Each of us should ask the question: What can I do to help? 

Volunteerism – Then & Now

Volunteerism has been interwoven in our society for hundreds of years. The notion of volunteerism has been exemplified in the U.S. since the early days of barn raisings and quilting bees. Women notably led volunteer efforts. Social problems such as nursing the sick, antislavery, prison reform, illiteracy and suffrage are examples of traditional women-dominated volunteer roles.

According to the US Bureau of Labor Statistics, people who are 35 years or older are 50% more likely to volunteer than those under the age of 35.  This is surprising since the 20 somethings are beginning their careers and would significantly benefit from the networking, skill building, and leadership development that occur through volunteerism. 

Volunteerism Matters

Following completion of graduate school, I returned to Erie with minimal contacts.  I joined the Junior Continue reading →

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Meet the Robots

Dan Portenier, left, selects responses for the robot while Jennifer Zona directs the therapy session.

On Thursday, June 14, we will be presenting, “Conversation with Brendan:  Robots, Grandkids and Autism.”  For those who will not be able to attend, I thought I would provide you with a brief update on the project. 

Planning for the project began last fall when Jen and Dan traveled to Notre Dame to meet with Joshua Diehl, PhD, professor and primary investigator in this study.  Preparation continued throughout Continue reading →

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Surviving Summer Travels

Now that summer vacation is almost upon us, I thought I would share a few tips about traveling, as many of us save our “trips” for this time of the year.  Whether you are traveling by car or by airplane, there are ways to make it easier for both you and your child.

  • Prepare your child for the trip far in advance.  In our family, I like to have a schedule of June, July and August so Continue reading →
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Update: Student Eligibility

In an April blog, I discussed how Eric Dompierre, a 19-year old student with Down Syndrome, might not be eligible to play football and basketball during his senior year of high school because of the age limit for sports eligibility in Michigan.  Under the previous language, students in Michigan who turn 19 before September 1st were prohibited from playing sports for the full academic year. 

Michigan students meeting the following requirements will now be able to formally file a waiver request with the Michigan High School Athletic Association (“MHSAA”): Continue reading →

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Pull-to-Sit Test

We all know the importance of early intervention for children with autism. We are constantly striving for earlier and more accurate diagnosis. That is why there is such interest from the wire services in a study that demonstrated weak head and neck control in babies may also be an early sign of autism.

Most of the screening tools for very young children look at language (babbling), eye contact, social behaviors and repetitive behaviors. So, what is new about this study Continue reading →

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Updates from IMFAR

The International Meeting for Autism Research (IMFAR) was held this month in Toronto.  This meeting attracts nearly 2,000 participants and presents research from basic science to potential new treatments.  Since few of us have the opportunity to attend these innovative sessions, I thought that I would try to review some of the presentations that may be of interest to all of us.  Continue reading →

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What Factors Increase the Risk of Autism?

There is much discussion among those in the autism community about certain factors that may increase the risk of autism. Many theories and studies are out there – genetics, prenatal environment, vaccines – the list goes on and on. Recently, however, I’ve had a number of people ask me for more specifics as to the increase risk of autism associated with older fathers. 

In a study published in February, the researchers analyzed almost 5 million births in California during the 1990’s with 12,159 of those cases being children diagnosed with autism. In the study, Continue reading →

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Young Adults With Autism

Ryan at his summer landscaping job at BNI

The first question I asked when learning that my son Ryan had an autism spectrum disorder was “What would his future look like?”  Up until then, I presumed that he would attend the University of Notre Dame, as my father, brother, sister and cousins had.  This dream was probably not possible, but what would happen when Ryan graduates high school?  Now that Ryan is 18 and a senior in high school, we continue to address the same question.

Continue reading →

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Presentation on Autism Issues by Dr. Joseph Barber

For those of you in the Erie area, my brother Dr. Joe Barber will be presenting Tuesday night, May 22, his first lecture at the Barber National Institute Forum from 6:00-7:15 p.m. His topic, “Upcoming Changes in the Diagnosis of Autism Spectrum Disorders,” is a “hot” issue as many have expressed concerns about the impact of the changes in DSM V. 

He will discuss common issues experienced by children with ASD and associated medical and mental disorders. He will provide an overview of past, present and future diagnostic categories and the effects proposed changes will have on child and parent. Be sure to come and hear his perspective and have your questions answered.

The program is free; however registration is appreciated.  Free babysitting is also offered with advance registration.  Call (814) 408-6831 or visit http://bit.ly/HD5olI to register.

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Defining Autism…Again

In early April, we discussed the planned revision of the medical definition of Autism Spectrum Disorder (ASD) in DSM V.  The proposed definition of Autism, which would eliminate Asperger Syndrome and “pervasive developmental disorder,” was criticized when researchers at Yale presented evidence that about half of the people who currently have a diagnosis on the higher end of the Autism Spectrum would no longer qualify under the new definition. 

Dr. David Kupfer, chairmen of the taskforce making revisions discussed these changes at Continue reading →

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