Finding the Right Summer Camp/Program for your Child

The Barber National Institute holds “Ready, Set, Ride!” each summer to help children with disabilities learn to ride a two-wheeler.

As I walk outside and see that sunshine, I realize that summer is right around the corner. I really encourage parents of children with special needs to begin planning early on to ensure that you find the appropriate program for your child. As this is something I have been doing for the past 15 years, I have a few suggestions you might want to consider:

• What do you want your child to accomplish this summer? What skills and lessons would you like to be reinforced?

• Are you interested in a continuation of his/her educational program? If you are responding yes to this question, you would want to first consider if your child is eligible for Extended School Year (ESY). Based upon your child’s IEP, he/she may be eligible for a part-time or full-time program throughout the summer. Continue reading

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Robot Therapy Research Begins

Over the past several years, more than $100 million has been spend trying to find the cause of autism. While this research is very important, I believe that we also have to invest in trying to find more effective treatment options.  That is why we were so excited today to join the University of Notre Dame in announcing our collaboration on a new research project.  Over the next 24-36 months, we will be evaluating the effectiveness of using a humanoid robot in clinical therapy for children ages 13-17 with autism.  

The pilot phase of the project began in April at the Barber National Institute with four children from the Elizabeth Lee Black School.  The initial study involves two 5-year old boys and two 3-year old girls. As the research moves Continue reading

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An Evolution of Research

There has been a great deal of “buzz” the last two weeks about the latest findings in a number of Autism research projects.

We have been pointed in the direction of genetics, which many believe accounts for roughly 20% of the cases.  Teams of scientists working independently have for the first time identified certain gene mutations that sharply increase the chances that a child will develop autism. Continue reading

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Celebrate the Week of the Young Child

April 22nd-28th is the annual celebration for the Week of the Young Child. Its purpose is to focus attention on the needs of young children and their families and to recognize early childhood programs and services which lay the future success of our very young children.

We as a society can ensure that children have a solid foundation for the future.  Quality early education is essential to healthy brain development and is the necessary first step in a child’s education.   When at risk children receive quality early education, they can make up developmental gaps from the early years and enter kindergarten at the grade level.  In Continue reading

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Early Intervention and our National Autism Agenda

The Centers for Disease Control and Prevention (CDC)recently updated its estimate of autism prevalence in children in the United States to 1 in 88 (1 in 54 boys and 1 in 252 girls).  This is a 78% increase from 2002.  These estimates are based upon a review of evaluations of children 8 years of age from multiple sources in 14 states in 2008.

Why such a dramatic increase? We certainly have better diagnoses, and we are diagnosing at even a younger age every year. The American Academy of Pediatric recommends that all children be screened at their 18- and 24-month check up.

We now have a broader scale to use to diagnose autism.  Since autism is a spectrum disorder, we have children diagnosed with milder forms, such as Asperger syndrome. Continue reading

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Should Schools Make Exceptions for Student Athletes with Disabilities?

Photo courtesy of detroitnews.com

Many of us read about the high school athlete with Down syndrome, Eric Dompierre, who was on the basketball team at his high school.  Unfortunately, he will be unable to play his senior season because the Michigan High School Athletic Association bars anyone who is 19 as of September 1 from participating in sports for that school year.  The young man has requested a waiver based on language used by eight other states that includes age role exceptions for students with disabilities. Continue reading

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Finding the Right App for your Child

We have talked about the value and uses of touch screen mobile devices and what to think about in making your selection.

Now that you’ve made your purchase, your next step is to search for fun and educational apps! This may seem like an overwhelming task, as there are 600,000+ apps available.  I do have a few suggestions that might assist you.

  • Select a touch screen device that meets the needs of your child
  • Discuss appropriate apps with professionals, such as the child’s therapist or teacher Continue reading
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Defining Autism

Many of us were very concerned in January when we learned that the planned revision of the medical definition of Autism Spectrum Disorder (ASD) would restrict its diagnosis in ways that could prevent many children and adults from receiving vital medical and social services.  One study found that the proposed revision to the American Psychiatrist Association (APA) would exclude 75% of those now diagnosed with milder forms of Autism, such as Asperger Syndrome or “Pervasive Developmental Disorder,” not otherwise specified (PDD-NOS.)

Autism Speaks has announced that they have funded a new analysis of the impact of the revision.  This study led by Yale child psychiatrist and epidemiologist Young-Shin Kim, M.D., Ph. D, will reassess children diagnosed with the DSM- IV criteria with the proposed DSM-V criteria.  Continue reading

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Tips for a Happier Easter

While holidays are filled with joyful memories, they can also bring added stress for parents. Changes in schedules, visits to unfamiliar sites and meeting new people can lead to challenging behaviors in some of our children.  In thinking about the upcoming Easter weekend, I wanted to share a few tips that I have learned over the years:

Avoid Easter Egg Hunts that involve hundreds of children. The noise, distractions, and unfamiliar faces can lead to anxiety in some children. What you hope to be a fun, positive experience, quickly can turn in the other direction. Continue reading

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Make Autism Services a Priority Now

The rate of autism has increased 78% in the past decade, yet the future of autism services has not been part of our national dialogue.  More children and families need our help in coping with this disorder in schools and communities at a time when we hear only of cutbacks in services.  Please read my op-ed piece, Treating autism needs to be an American priority,”  featured in yesterday’s Erie Times News.

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