You Don’t have to be Holly Robinson Peete to be Aware of Autism

holly and rodney peete

Holly Robinson Peete and her husband Rodney
Photo courtesy of zimbio.com

Actress Holly Robinson Peete and her husband NFL star Rodney Peete are aware of autism. Their son, R.J., was diagnosed with autism at the age of three.  Inspired by their son, Holly and Rodney embarked on the journey of autism with faith, a willingness to learn, a passion to educate and a desire to bring autism awareness to parents, friends and the world.  They have a platform, through their celebrity status, to highlight autism and are using it for the betterment of awareness, research, advocacy, and information for families — the very same four pillars of the Autism Speaks mission. Continue reading

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What’s the Secret to Autism Awareness?

TRR_0340Autism Awareness Month is not simply for parents raising a child or
children diagnosed with autism.  This month is for everyone. For parents of typical children, grandparents, friends, coworkers, teachers, social workers, police officers, employers, store clerks, etc. This is the month — I hope — that the world discovers the secret to autism awareness. What’s that secret?

The secret to autism awareness is Continue reading

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10 Reasons Why World Autism Awareness Day Matters to Me

ImageToday is the 6th Annual World Autism Awareness Day, and I think that is something to celebrate. Here’s why:

  1. Because in my experience as a mom, educator and administrator, autism awareness is working! It’s evolving from awareness to acceptance.
  2. Because of the history of this special day. Recognized in countries across the continent as World Autism Day, The United Nations established this day in 2008 to promote greater understanding about autism, the fastest growing developmental disability in the United States.  Continue reading
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8 Tips for Successful Holidays or Events for Kids on the Spectrum

christmas-kidsHolidays and family events are a joy and a stress in many families for both parents and children. If you have a child with special needs, these celebrations can become challenging. In a previous blog I offered some tips to making the most of holidays. Whether Christmas or Easter, I hope you find them helpful as the weekend approaches.

Look at the holiday through your child’s eyes

What aspects of the holiday would your child enjoy? Many parents simply enjoy buying gifts for a child. However, too many gifts can be too stimulating for some children. I found that with Ryan, three gifts work for him. Focusing on what he finds interesting is most important.

Adapt an Advent Calendar

Ryan and I often do a countdown while focused on the religious aspect of Easter. I also prepare Ryan for visits with family and social outings by using social scripting. By creating a countdown and practicing expectations, Ryan is better prepared for the events.

Decorate Throughout the House

If your child is over stimulated by sensory experiences, you may wish to limit the amount of decorations in one room and/or gradually decorate your home. Decorations are fun, but they are a change, and with change, comes anxiety.

Keep it Simple

Limit your schedule. When Ryan was about three years old, I noticed that he was quickly bored when visiting other’s homes, causing various behavior challenges. At that point, I made visits shorter. We followed the same routine starting early around 4:30 p.m. and ending by 6:30 p.m. Talking to your family about your schedule and why you need to keep your visits short and structured will not only help you, but allows them to understand.

Two Cars are Better Than One

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Autism: Questions and Answers

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There were activities for children and autism resources for parents at Autism Awareness Day.

Last Saturday, we hosted an “Autism Awareness Day” at the Millcreek Mall in Erie, PA. I had the opportunity to talk with a number of people who asked questions about some of the latest research findings.

The most frequently asked question revolved around the news that 1 in 50 school aged children are affected by autism disorders. This new statistic was the result of a recent government health telephone survey of 100,000 parents with children ages 6-17. While this number will not replace the official estimate of 1 in 88 American children, it indicates that the current estimate may in fact be lower than previously thought. Another point noted in the survey was that many children are not getting a diagnosis until 7 years of age or older, which is a surprise because we stress the importance of early diagnosis. This new information highlights the importance of increasing autism awareness, not only during April but all year long. Continue reading

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Real Choices, Real Jobs

ImageWhat happens after your child graduates from high school?

Will he or she be able to get a job?

Will he or she be able to live independently?

These are questions that parents of children with disabilities ask themselves, often when their child is still in elementary school.  For the parent of a “differently-abled” child, these questions are imperative because the traditional paths of college, career and independent living may or may not be on the horizon — A journey I’ve experienced personally.

My son Ryan was born in 1993. I remember thinking that he would be a Notre Dame student, class of 2016. That dream quickly transformed to questions, and at the time that he received his diagnosis, I keenly remember saying to my friend, Jeanne, “I guess that he won’t be going to Notre Dame.”

In that moment I knew his future would take him down different paths and questions began to swirl through my mind: Would he go to school? What would his future hold? Will he work? Continue reading

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Hare Care: Here comes the Easter Bunny!

ImageSunday was St. Patrick’s day, spring begins tomorrow (even though snow is falling outside my window), and Easter is right around the corner. Isn’t time flying by? As the days roll onward, I am making a concerted effort to take in and savor the joys of life surrounding me.

Springtime is one of my favorite times of the year–there is freshness in the air and new life in the blossoming flowers.  I am so looking forward to spring and the joy begins this weekend with a visit from a special friend.

The Easter Bunny has a busy day Saturday, March 23 as he leaves his usual bunny trails and hops to the Millcreek Mall in Erie, PA. We will be right along side of him as we are there with our annual Autism Awareness Day from 11 a.m.-3 p.m. to kick off Autism Awareness Month in April. Continue reading

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What I learned from blogging

ImageOne year, 100+ blog posts and 12,000 views ago, I began blogging. I must admit that I didn’t know much about how to get started except that I would have to do a lot of writing, put up photos and come up with a blog design that was aesthetically appealing. I became familiar with the ins and outs of blogging as I went along, but what did I really learn?

Blogging is a Commitment: I begin on Monday morning researching the “hot topics” in autism. My goal is to have a rough draft completed by later that afternoon.  On Tuesday I edit and finalize content so that I can publish it that afternoon. Continue reading

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What’s happening in three weeks?

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Bicentennial Tower at Dobbins Landing in Erie, PA lit up to spread autism awareness

How do you focus international attention on Autism? The Light It Up Blue campaign, sponsored by Autism Speaks, shines an international spotlight on the importance of autism education, research and support. On Tuesday, April 2, communities, schools, businesses and supporters around the world will join forces to increase autism awareness.

I’m excited to see the Erie community participate. The Bicentennial Tower will shine blue, our students and faculty will be wearing blue, and blue light bulbs will be shining at hundreds of residences and businesses through our community.

This movement stretches from Erie, PA to The Great Pyramids in Giza, Egypt, to the Reunion Tower in Dallas, Texas to the world famous Sydney Opera House in Australia and to Table Mountain in Cape Town, South Africa.

There is still time to join us: Continue reading

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Read Across America & the Importance of Reading

ImageMayor Joe Sinnott, lifelong resident of Erie, made a visit to the Elizabeth Lee Black School today. He joins 40+ other community members who have come to our school this week as volunteer readers to our students. We are so honored that Mayor Sinnott joins us in our Seusstastical reading celebration! We asked the Mayor to share his thoughts about this experience with us.

You have been a volunteer reader before. What do you enjoy most about reading to the children?

I enjoy seeing their reactions to the rhymes and especially appreciate when the children join in with the rhyming.  

What book did you read this year?

“Are You My Mother?”

When you think of Dr. Seuss, what book first comes to mind?

“Green Eggs and Ham”

Which of the Dr. Seuss books is your favorite as a child and/or as an adult?

I remember having “Green Eggs and Ham” read to me as a child and still appreciate the message, reminding us to try new things. Continue reading

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