WanderingOur children are excited as they approach their final countdown to summer vacation. We as parents have probably been planning our children’s vacation schedule since the beginning of April.  I know I always did.  Summer is a time when we are vacationing at the beach, visiting amusement parks, out and about and having fun.  Even though summer is a fun and exciting few months, it is also a worrisome time because our children may have opportunities to wander.

As June is National Safety Month I hope to update everyone and increase awareness about this critical safety issue. Since I wrote my previous blogs (Children with ASD and Wandering, Safety Measures for a Wandering ChildPlanning and Prevention Tips for Children with ASD and The Search for Avonte) on wandering there have been a number of new supports that have become available to decrease the dangers of wandering.

Why do children wander?

  • Goal directed wandering: wandering child in tunnelwandering with a purpose of getting something he/she wants
  • Bolting / Fleeing wandering: running away out of fear, anxiety, excitement or stress
  • Wandering due to boredom, confusion or simply becoming lost

What can you do as a parent to be prepared?

  • National Autism Society has a Big Red Safety Toolkit that provides you with caregiver checklists, sample family wandering emergency plan, information sheet for first responders.
  • They also have a toolkit for First Responders, which includes a checklist, resources andwandering PLI-wanderer tips
  • Tracking Devices: There are a couple of varieties.  GPS depends upon satellites to provide positioning and navigation information.  Project Lifesaver, CareTrak and LoJack SafetyNet are typically facilitated by local law enforcement and use radio frequency.
  • GeoFencing: a feature in a software program that uses the global positioning system (GPS) or radio frequency identification (RFID) to define geographical boundaries. A geofence is a virtual barrier.
  • Tracking devices alone should not be relied upon as the sole source of your loved one’s security. Close adult supervision, home security measures and other safety precautions should always be taken and routinely reassessed for updated when necessary.
  • Teach your child to swim.  Many YMCAs have swimming lessons for children with special needs.  It is recommended that the final lesson should be with clothes and shoes on.wandering girl_by_lake

As we gear up for all of the fun activities I wish you a safe and happy summer.  Ryan and I will be swimming, playing tennis, golfing and kayaking.  I’m tired already.

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Dr. George provided walkers to two boys

Dr. George provided walkers to two boys who sat on the floor all day long. Like typical boys, they even learned to run using the walkers. One boys legs have developed enough and is now able to walk unassisted. (Photo Credit: http://www.nspreschurch.org/india.html)

It was 1990 and David Householder of the North Sewickley Presbyterian Church recommended to Dr. V.C. George that he come to Erie for on-the-job training at the Dr. Gertrude A. Barber Center. At that time he was a manager of a program for adults with disabilities in India.  Dr. George spent four months with us learning about everything we did for children and adults with disabilities in our school, with our adult services and in our residential programs.  He returned to India to begin his mission.

He came back to Erie in the late 90s and early 2000s many, many times, always committed to learning the state-of-the-art programs. One summer, our physical therapist, Tom Hudson, returned to India with him to spend six weeks assisting Dr. George with establishing his programs for children and adults with disabilities.  In 2008, Dr. George dedicated his school for children with disabilities. A few years later he began a small center for adults with disabilities.  Dr. George currently serves as Clinical Psychologist/ Administrator of Vadaketh Development Center, Miraj, Maharashtra, India and is President of the Indian Association of Clinical Psychologists.

Vadaketh Center

Vadaketh Center in Miraj, Maharastra, India

 

In addition to providing these direct services, Dr. George has been able to help at least two other village schools begin to serve children with disabilities. Also, he is a voice for these children at the national level in India and is influencing the priorities and services India offers persons with disabilities.

SONY DSC

Photo Credit: L – R; Maureen Barber-Carey, Dr. V.C. George, Irene George, Bridget Barber, John Barber

 

Today, 24 years later, he has returned to the Barber National Institute to offer us an update on the Vadaketh Development Center and to learn from us what is current that is practiced in the field of disabilities. Dr. George frequently comments that he has established a Gertrude Barber Center in India.  I look forward to his visit and will share his comments in future blogs.

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Break the Stigma!

mental-health-monthAs we focus on May as Mental Health Awareness Month, we know that there is a great deal of misunderstanding about mental illness. Unfortunately, negative attitudes and beliefs toward people who have a mental health condition are common.  Although 1 in 4 people have some form of a mental health disorder, a recent study found that in Europe and the United States up to 75% of those affected don’t receive the treatment they need.

Too often people are reluctant to seek help because of the stigma attached to mental illness1 in 4 mental illness and are afraid to let anyone know they have an issue. Those most affected by the stigma are young people, those from minority ethnic groups, members of the military and healthcare professionals.

What can you do? Take the pledge to break the stigma.  People across the country are finding innovative ways to start the mental health dialogues in their communities.  In Charlotte, event organizers arranged a flash mob, photography, documentary video, and a pledge to break the stigma.  For more information visit the National Institute of Mental Health website.

After you check out the videos below I think you’ll be willing to take the pledge.

For more resources:
National Alliance on Mental Illness
Creating Community Solutions
The Civic Commons

I encourage you to join them on FB and Twitter and help break the stigma.

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Bridging The Digital Divide

preKI was fortunate to attend Tuesday’s “Bridging the Digital Divide: A Forum on Using Technology in Early Childhood Education” sponsored by the RAND Corporation and PNC Grow Up Great. This was an excellent opportunity to hear from education experts and network on this important policy issue.  Knowing that eighty percent of four year olds receive regular care from someone other than their parents and three quarters of these children attend a preschool program, a quality early childhood education (ECE) is essential.  We know that increased higher education graduation rates, good jobs, higher earnings and greater self-sufficiency come from quality ECE.  Unfortunately, too many disadvantaged children are behind their peers in technology, access and use.  The question remains can technology and ECE reduce this digital divide, as well as, provide opportunities to build cognitive, social and motor skills.

TRR_0588eA two prong approach is needed that supports access to devices not only in schools but also in households in low income areas. Too many preschools do not have computers, adequate bandwidth and appropriate software.  As I listened to the presentations, I was heartened that BNI had made a significant commitment to ensure that the infrastructure that we needed was in place.  Today our school is wireless; we have two desktop computers per room and 70+ iPads.  Yet computers and iPads remain only one tool in a teacher’s tool kit.

I was excited to hear aboutTRR_7872 Message From Me, a new system of communication between pre-k children and their parents to improve school and home consistency. Funded through a grant from The Grable Foundation and PNC Grow Up Great, preschool children are able to take digital pictures, record audio messages and send them to their families via email and cell phone technology.  The outcomes are many:  increased self-esteem and independence, enhanced communication and social skills.  What parent would not enjoy receiving a message from their child at school?  Currently in the pilot phase, I learned that an app should become available in September.

Thanks to PNC Grow Up Great for sponsoring this research and leading the charge to bring quality ECE to all children.

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May is Better Speech and Hearing Month – Celebrate The SLP in Your Life Today!

Since May is Better Speech and Hearing Speech Therapistsmonth I thought it would be fun to pose some questions to our Speech Language Pathologists (SLP) and share their responses with you.

Our talented SLP team includes Alicia Anthony, Amy Moczulski, Danielle Herbe, Danielle Kirsch, Emily Landkrohn and Pam Goetz.

What is the most rewarding about being a SLP?

  • Seeing a child make gains because of the services you are providing
  • Seeing the excitement on a student’s face when they are successful in communicating something that they weren’t able to before
    Anthony, Alicia
    Alicia Anthony
  • The moment when I see the light in the child’s eyes because they just realized they can communicate
  • Interacting with the families of my students and hearing parents talk about the gains and successes that their child has achieved.

What are some of the challenges?

  • Juggling time with therapy sessions, paperwork, meetings, makeup sessions and billing.
  • Discovering what the best access method is for each individual to allow him or her to
    Herbe, Danielle
    Danielle Herbe

    be the most successful in accessing and using various augmentative and alternative communication devices.

  • Staying current with everything new and promising in the field without losing sight of solid, tried and true therapy techniques and materials.
  • There is never enough time in the work day to devote to my students and their many needs.

What would you say to encourage others to work in this field?

  • Communication is one of the most powerful tools that we have to use in life to convey
    Kirsch, Danielle
    Danielle Kirsch

    our thoughts, opinions and beliefs and to relate to the world and people around us.  Having a career that helps people of all ages improve their communication makes a positive difference in the world and the lives of others.

  • One of the best aspects of being a SLP is how rewarding it can be in making a positive difference in the lives of both children and adults.  There are many different settings and needs so it’s exciting to have many options.
  • This is a profession in which you can truly feel that you have made a difference in many children’s lives.

    Landkrohn, Emily

    Emily Landkrohn

  • There are many reasons.  SLPs have many options in choosing a population and a setting.  Regardless of which career path you choose the end result is the same.  You are providing therapy to individuals to improve their communication skills and to reach their fullest potential.
Moczulski, Amy

Amy Moczulski

We are so fortunate to have these SLPs working with our BNI family. It takes a special person who thrives on the challenges to work with a diverse population and who enjoys working closely with families. Thank you for your dedication and hard work.

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A Year of Music

2013-11-25 11.20.05 edited

Erie Chamber Orchestra

As I think back over the 2013-14 school year it has been a year of “music.” Monthly visits with Steve Weiser and the Erie Chamber Orchestra featured 11 hands-on events, concerts and activities. The children enjoyed the brass quintet and percussion concerts, an instrumental petting zoo and were introduced to the violin, cello, bass and oboe to name only a few. Weekly visits by Young People’s Chorus of Erie with Dr. Gabrielle Dietrich, Alyson Amendola, Jeremy Flock, Alaina Manchester directed our high school students as a satellite chorus.  In addition, our students participated in a Musical Revue through the Erie Playhouse in April and today we are performing “Here Comes The Sun” at the annual Garden Party (video & photo).

Young People's Chorus of Erie

Young People’s Chorus of Erie

We have seen numerous benefits to the infusion of music in our curriculum.

  • The multisensory quality of music allowed students to hear music, be visually stimulated by the movement, imitate the beats and play some instruments
  • Music promoted communication among our students, their peers and instructors
  • Music was an effective way to stimulate and maintain focus and attention
  • Music had a calming effect with many of our children with anxiety disorders
  • Students who had difficulty in some academic areas were successful in music
  • Rhythm helped students slow down their rate of speech and became more intelligible

    Musical Revue with Erie Playhouse

    Musical Revue with Erie Playhouse

The positive changes we have seen in the students’ behavior, communication and emotional well-being are remarkable. Just view this video of “Here Comes The Sun” and you’ll see firsthand the excitement and happiness on their faces.

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Friendship Abounds at Connections Camp

“My child was not successful at SONY DSCthe local summer day camps. What can you offer me?”  Fourteen years ago a small group of parents of children with high functioning autism/Asperger’s approached me and asked me to help them find a solution to the challenges and obstacles their children were experiencing in the traditional day camp.  They were looking for a summer recreation program where their children could be together, have fun and develop friendships. Their children were in inclusive educational placements and progressing well academically but didn’t have friends.  Their parents worried that another summer would pass with the children alone at home playing video games or reading books about their special interests.  They wanted SONY DSCmore.

That is how Connections Camp began in 2000 as a day camp for children ages 5-14 diagnosed with high-functioning autism, Asperger syndrome or pervasive development disorder.  Today it is a model program that helps children and teens develop interpersonal skills, manage their emotions and make good decisions. Through the use of social coaching, campers are encouraged to work through difficult social situations and react positively to these challenges.

Today we are announcing a collaboration among the Erie SeaWolves, BNI and the Erie SONY DSCSiebenbuerger.  The SeaWolves will offer a baseball clinic at Jerry Uht Park on Tuesday, July 22nd for participants in the Connections Camps.  Erie SeaWolves players and coaches will help teach baseball fundamentals such as fielding, throwing, pitching and base running.  They will also cover topics such as nutrition, proper stretching and exercise.  The goal is for youngsters to take what they learn at the clinic and put it to use on school and neighborhood fields with their friends, classmates or in a league. In addition, to the instruction provided at the Clinic, each child will receive a t-shirt, certificate and a ticket to an Erie SeaWolves game, where they will be recognized on the field before the start of play.

At the close of Connections Camp, the children exchange email addresses, make future SONY DSCsocial dates and look forward to getting together the following summer. As one child told me, “I don’t have any friends at school but at Connections Camp I have lots.”  Definitely a win-win for all of the children involved.

Connections Camp will be held Wednesday, June 25th through Tuesday, July 29th, 2014 from 9:00 a.m. to 3:00 p.m. daily. Connections Camp will be held in Erie at Gannon University and in Warren County at Youngsville Elementary School. Registration forms are available.  Space is limited so sign up today.

If you live outside of the Erie area please visit Autism Speaks for their summer camp directory.

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Mother’s Day

As I was planning my blog for Mother’s Day, I thought, “Why don’t I ask for Ryan’s input?” Last night, while he was having dessert, I asked the question, “Tell me about your mom.” The following are his (unedited) responses:

“You look pImageretty.

You let me do fun things.

You paid for me to go skiing.

You take me out to dinner.

You are nice because you help me and other people a lot.

You take me to movies.

You are kind and merciful because you help me with clothes, made my bed, help kids get bikes at Barber Center.

You taught me to be kind and merciful and the importance of helping God every day by helping others.

You help me out a lot.

You work out with me at LECOM and Build Your Bod and play tennis and golf and bowling.

You taught me how to fold clothes, do things, to cook, be safe.

You made me go to school and I learned there how to get a job.

You helped me learn how to interact with people.

You helped me to learn to do emails by myself and find the internet.

You helped me learn how to behave by helping me understand what I was allowed to do and not allowed.

You went to school a long time so you know a lot of things about school that you could then teach me.

You think that family is important, I get to enjoy them and you taught me they are important too.

You taught me how to work hard and try hard and put my best effort to everything I do.

Happy Mother’s Day, Mom. I love you! You are very important to me. I am very grateful to have you in my life.

Thank you for everything you have done for me. I would not want anyone else to be my mom.”

by Ryan Carey

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Teacher Appreciation Week

I’d like to invite you to talk a walk with me down memory lane and think about the teachers in your lives that truly made a difference. I immediately think of my 8th grade teacher at Villa Maria Grade School, Sister Eulalia. Sister was an older Josephite nun, who had taught my father English at Saint Ann’s School. When I first walked into her classroom, my knees were shaking, my hands were sweating, and I was in a state Imageof panic. Why? Sister Eulalia was, first and foremost, a strict grammarian. Under her tutelage, we diagrammed “Our Father,” “Hail Mary,” and every other prayer recommended by Sister. It was her belief that unless you could diagram, you could not write a clear, concise sentence that would effectively communicate your message. By the time I graduated from 8th grade, not only could I diagram every prayer, but I actually wrote a paragraph worthy of Sister’s approval. I love writing, even today, and I thank Sister Eulalia for enabling me to develop those skills.

ImageMy next thought of influential teachers brings up Ryan’s academic career. He was very fortunate to have many outstanding teachers throughout his career in the Millcreek School District. Two teachers who truly made a difference in Ryan’s education were Darcie Mosley and Regina Cocolin. As principal of Walnut Creek Middle School, Darcie welcomed Ryan into the WC family from his first day in 6th grade. Regardless of his challenges, she was Ryan’s greatest champion and cheerleader. I attribute his success in middle school to Darcie’s leadership. Regina Cocolin was Ryan’s speech teacher in high school. The enthusiasm and commitment to his success that was shown by Regina encouraged Ryan to achieve the very best.
Finally, my thoughts are drawn to the teachers and therapists on the ELBS faculty. These individuals make dreams come true for our students, each and every day. It is my honor, and pleasure, to work with them on a daily basis. I congratulate each of them as they continue to carry out the mission of Dr. Gertrude Barber.

Do you remember your most influential teacher(s)? I invite you to share those memories with everyone here!

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“A teacher is a compass that activates the magnets of curiosity, knowledge, and wisdom in the pupils.”
– Ever Garrison

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Mini Beast on the Bay & National Physical Fitness Month

ImageThe Mini Beast on the Bay obstacle course is back for its second year and is even better! Last year, the ELBS faculty and students chose to initiate a Mini Beast as their way to participate in the Barber Beast on the Bay. It was such a great learning experience for our students that it has become an annual event. Through a team effort by teachers and therapists, our entire gymnasium is transformed into an adaptive obstacle course. These obstacles include a cannon ball relay race, a “beach encounter” where students walk, wheel, or crawl through the sand and other obstacles, a wet ‘n’ wild wave pool, and a mini tall ship where our students/crew can perform tasks such as raising the flag, steering the ship, and hoisting the anchor. These activities provide a multitude of opportunities for students to engage in social language with their peers and staff, request activities, practice turn taking, and function as a classroom team.

The Mini Beast on the Bay is a great event to close Autism Awareness Month and begin National ImagePhysical Fitness Month. The President’s Council on Fitness, Sports & Nutrition(PCFSN) has recognized that the importance of children and adults with disabilities participating in physical activity and has established theI Can Do It, You Can Do It!(ICDI) program. You too can promote these efforts by:

–      Incorporating exercise into your family’s busy lifestyle by making small changes, like taking a walk after dinner or going for a bike ride.

–      Encourage teachers and administrators to make physical activity a part of every student’s day.Image

–      Recruit youth leaders in the community to visit your school and talk to their peers about the importance of being active.

–      Welcome children with disabilities into organized team sports.

–      Visit this webpage for some basics of fitness , whether you are a senior citizen, millennial, teenager, or adolescent

I’d like to leave you with the following statement from Anthony Marc Robles, a PCFSN Council Member and champion for the involvement of children and adults with disabilities in physical fitness and activities:

“I am committed to empowering kids and adults with disabilities to experience freedom through sports and recreational activities. Sports are a gateway to meeting new friends, learning important life skills and improving your health. However, not all children and adults with disabilities have access and opportunities to enjoy being active like I did. And since individuals with disabilities have a greater need for regular physical activity and good nutrition to prevent obesity and other chronic conditions, it is even more important that schools and communities provide equal opportunities for all Americans to lead healthy, active lives.”

 

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