May is Better Speech and Hearing Month – Celebrate The SLP in Your Life Today!

Since May is Better Speech and Hearing Speech Therapistsmonth I thought it would be fun to pose some questions to our Speech Language Pathologists (SLP) and share their responses with you.

Our talented SLP team includes Alicia Anthony, Amy Moczulski, Danielle Herbe, Danielle Kirsch, Emily Landkrohn and Pam Goetz.

What is the most rewarding about being a SLP?

  • Seeing a child make gains because of the services you are providing
  • Seeing the excitement on a student’s face when they are successful in communicating something that they weren’t able to before
    Anthony, Alicia
    Alicia Anthony
  • The moment when I see the light in the child’s eyes because they just realized they can communicate
  • Interacting with the families of my students and hearing parents talk about the gains and successes that their child has achieved.

What are some of the challenges?

  • Juggling time with therapy sessions, paperwork, meetings, makeup sessions and billing.
  • Discovering what the best access method is for each individual to allow him or her to
    Herbe, Danielle
    Danielle Herbe

    be the most successful in accessing and using various augmentative and alternative communication devices.

  • Staying current with everything new and promising in the field without losing sight of solid, tried and true therapy techniques and materials.
  • There is never enough time in the work day to devote to my students and their many needs.

What would you say to encourage others to work in this field?

  • Communication is one of the most powerful tools that we have to use in life to convey
    Kirsch, Danielle
    Danielle Kirsch

    our thoughts, opinions and beliefs and to relate to the world and people around us.  Having a career that helps people of all ages improve their communication makes a positive difference in the world and the lives of others.

  • One of the best aspects of being a SLP is how rewarding it can be in making a positive difference in the lives of both children and adults.  There are many different settings and needs so it’s exciting to have many options.
  • This is a profession in which you can truly feel that you have made a difference in many children’s lives.

    Landkrohn, Emily

    Emily Landkrohn

  • There are many reasons.  SLPs have many options in choosing a population and a setting.  Regardless of which career path you choose the end result is the same.  You are providing therapy to individuals to improve their communication skills and to reach their fullest potential.
Moczulski, Amy

Amy Moczulski

We are so fortunate to have these SLPs working with our BNI family. It takes a special person who thrives on the challenges to work with a diverse population and who enjoys working closely with families. Thank you for your dedication and hard work.

Posted in Uncategorized | Tagged , , , , , , , , , , , , | 2 Comments

A Year of Music

2013-11-25 11.20.05 edited

Erie Chamber Orchestra

As I think back over the 2013-14 school year it has been a year of “music.” Monthly visits with Steve Weiser and the Erie Chamber Orchestra featured 11 hands-on events, concerts and activities. The children enjoyed the brass quintet and percussion concerts, an instrumental petting zoo and were introduced to the violin, cello, bass and oboe to name only a few. Weekly visits by Young People’s Chorus of Erie with Dr. Gabrielle Dietrich, Alyson Amendola, Jeremy Flock, Alaina Manchester directed our high school students as a satellite chorus.  In addition, our students participated in a Musical Revue through the Erie Playhouse in April and today we are performing “Here Comes The Sun” at the annual Garden Party (video & photo).

Young People's Chorus of Erie

Young People’s Chorus of Erie

We have seen numerous benefits to the infusion of music in our curriculum.

  • The multisensory quality of music allowed students to hear music, be visually stimulated by the movement, imitate the beats and play some instruments
  • Music promoted communication among our students, their peers and instructors
  • Music was an effective way to stimulate and maintain focus and attention
  • Music had a calming effect with many of our children with anxiety disorders
  • Students who had difficulty in some academic areas were successful in music
  • Rhythm helped students slow down their rate of speech and became more intelligible

    Musical Revue with Erie Playhouse

    Musical Revue with Erie Playhouse

The positive changes we have seen in the students’ behavior, communication and emotional well-being are remarkable. Just view this video of “Here Comes The Sun” and you’ll see firsthand the excitement and happiness on their faces.

Posted in Uncategorized | Tagged , , , , , , , , , | 2 Comments

Friendship Abounds at Connections Camp

“My child was not successful at SONY DSCthe local summer day camps. What can you offer me?”  Fourteen years ago a small group of parents of children with high functioning autism/Asperger’s approached me and asked me to help them find a solution to the challenges and obstacles their children were experiencing in the traditional day camp.  They were looking for a summer recreation program where their children could be together, have fun and develop friendships. Their children were in inclusive educational placements and progressing well academically but didn’t have friends.  Their parents worried that another summer would pass with the children alone at home playing video games or reading books about their special interests.  They wanted SONY DSCmore.

That is how Connections Camp began in 2000 as a day camp for children ages 5-14 diagnosed with high-functioning autism, Asperger syndrome or pervasive development disorder.  Today it is a model program that helps children and teens develop interpersonal skills, manage their emotions and make good decisions. Through the use of social coaching, campers are encouraged to work through difficult social situations and react positively to these challenges.

Today we are announcing a collaboration among the Erie SeaWolves, BNI and the Erie SONY DSCSiebenbuerger.  The SeaWolves will offer a baseball clinic at Jerry Uht Park on Tuesday, July 22nd for participants in the Connections Camps.  Erie SeaWolves players and coaches will help teach baseball fundamentals such as fielding, throwing, pitching and base running.  They will also cover topics such as nutrition, proper stretching and exercise.  The goal is for youngsters to take what they learn at the clinic and put it to use on school and neighborhood fields with their friends, classmates or in a league. In addition, to the instruction provided at the Clinic, each child will receive a t-shirt, certificate and a ticket to an Erie SeaWolves game, where they will be recognized on the field before the start of play.

At the close of Connections Camp, the children exchange email addresses, make future SONY DSCsocial dates and look forward to getting together the following summer. As one child told me, “I don’t have any friends at school but at Connections Camp I have lots.”  Definitely a win-win for all of the children involved.

Connections Camp will be held Wednesday, June 25th through Tuesday, July 29th, 2014 from 9:00 a.m. to 3:00 p.m. daily. Connections Camp will be held in Erie at Gannon University and in Warren County at Youngsville Elementary School. Registration forms are available.  Space is limited so sign up today.

If you live outside of the Erie area please visit Autism Speaks for their summer camp directory.

Posted in Uncategorized | Tagged , , , , , , , , , , , | Leave a comment

Mother’s Day

As I was planning my blog for Mother’s Day, I thought, “Why don’t I ask for Ryan’s input?” Last night, while he was having dessert, I asked the question, “Tell me about your mom.” The following are his (unedited) responses:

“You look pImageretty.

You let me do fun things.

You paid for me to go skiing.

You take me out to dinner.

You are nice because you help me and other people a lot.

You take me to movies.

You are kind and merciful because you help me with clothes, made my bed, help kids get bikes at Barber Center.

You taught me to be kind and merciful and the importance of helping God every day by helping others.

You help me out a lot.

You work out with me at LECOM and Build Your Bod and play tennis and golf and bowling.

You taught me how to fold clothes, do things, to cook, be safe.

You made me go to school and I learned there how to get a job.

You helped me learn how to interact with people.

You helped me to learn to do emails by myself and find the internet.

You helped me learn how to behave by helping me understand what I was allowed to do and not allowed.

You went to school a long time so you know a lot of things about school that you could then teach me.

You think that family is important, I get to enjoy them and you taught me they are important too.

You taught me how to work hard and try hard and put my best effort to everything I do.

Happy Mother’s Day, Mom. I love you! You are very important to me. I am very grateful to have you in my life.

Thank you for everything you have done for me. I would not want anyone else to be my mom.”

by Ryan Carey

Posted in Uncategorized | Tagged , , , , | 10 Comments

Teacher Appreciation Week

I’d like to invite you to talk a walk with me down memory lane and think about the teachers in your lives that truly made a difference. I immediately think of my 8th grade teacher at Villa Maria Grade School, Sister Eulalia. Sister was an older Josephite nun, who had taught my father English at Saint Ann’s School. When I first walked into her classroom, my knees were shaking, my hands were sweating, and I was in a state Imageof panic. Why? Sister Eulalia was, first and foremost, a strict grammarian. Under her tutelage, we diagrammed “Our Father,” “Hail Mary,” and every other prayer recommended by Sister. It was her belief that unless you could diagram, you could not write a clear, concise sentence that would effectively communicate your message. By the time I graduated from 8th grade, not only could I diagram every prayer, but I actually wrote a paragraph worthy of Sister’s approval. I love writing, even today, and I thank Sister Eulalia for enabling me to develop those skills.

ImageMy next thought of influential teachers brings up Ryan’s academic career. He was very fortunate to have many outstanding teachers throughout his career in the Millcreek School District. Two teachers who truly made a difference in Ryan’s education were Darcie Mosley and Regina Cocolin. As principal of Walnut Creek Middle School, Darcie welcomed Ryan into the WC family from his first day in 6th grade. Regardless of his challenges, she was Ryan’s greatest champion and cheerleader. I attribute his success in middle school to Darcie’s leadership. Regina Cocolin was Ryan’s speech teacher in high school. The enthusiasm and commitment to his success that was shown by Regina encouraged Ryan to achieve the very best.
Finally, my thoughts are drawn to the teachers and therapists on the ELBS faculty. These individuals make dreams come true for our students, each and every day. It is my honor, and pleasure, to work with them on a daily basis. I congratulate each of them as they continue to carry out the mission of Dr. Gertrude Barber.

Do you remember your most influential teacher(s)? I invite you to share those memories with everyone here!

Image

“A teacher is a compass that activates the magnets of curiosity, knowledge, and wisdom in the pupils.”
– Ever Garrison

Posted in Uncategorized | Tagged , , , , , , , , | 2 Comments

Mini Beast on the Bay & National Physical Fitness Month

ImageThe Mini Beast on the Bay obstacle course is back for its second year and is even better! Last year, the ELBS faculty and students chose to initiate a Mini Beast as their way to participate in the Barber Beast on the Bay. It was such a great learning experience for our students that it has become an annual event. Through a team effort by teachers and therapists, our entire gymnasium is transformed into an adaptive obstacle course. These obstacles include a cannon ball relay race, a “beach encounter” where students walk, wheel, or crawl through the sand and other obstacles, a wet ‘n’ wild wave pool, and a mini tall ship where our students/crew can perform tasks such as raising the flag, steering the ship, and hoisting the anchor. These activities provide a multitude of opportunities for students to engage in social language with their peers and staff, request activities, practice turn taking, and function as a classroom team.

The Mini Beast on the Bay is a great event to close Autism Awareness Month and begin National ImagePhysical Fitness Month. The President’s Council on Fitness, Sports & Nutrition(PCFSN) has recognized that the importance of children and adults with disabilities participating in physical activity and has established theI Can Do It, You Can Do It!(ICDI) program. You too can promote these efforts by:

–      Incorporating exercise into your family’s busy lifestyle by making small changes, like taking a walk after dinner or going for a bike ride.

–      Encourage teachers and administrators to make physical activity a part of every student’s day.Image

–      Recruit youth leaders in the community to visit your school and talk to their peers about the importance of being active.

–      Welcome children with disabilities into organized team sports.

–      Visit this webpage for some basics of fitness , whether you are a senior citizen, millennial, teenager, or adolescent

I’d like to leave you with the following statement from Anthony Marc Robles, a PCFSN Council Member and champion for the involvement of children and adults with disabilities in physical fitness and activities:

“I am committed to empowering kids and adults with disabilities to experience freedom through sports and recreational activities. Sports are a gateway to meeting new friends, learning important life skills and improving your health. However, not all children and adults with disabilities have access and opportunities to enjoy being active like I did. And since individuals with disabilities have a greater need for regular physical activity and good nutrition to prevent obesity and other chronic conditions, it is even more important that schools and communities provide equal opportunities for all Americans to lead healthy, active lives.”

 

Posted in Uncategorized | Tagged , , , , , , , | Leave a comment

“Autism – What We Know” by Wendy Chung

For today’s blog, I originally planned to take a look back on the month of April and our activities.

However, I just watched a TED Talk titled “Autism – What We Know (And What We Don’t Know Yet)” by Wendy Chung, the Simons Foundation Autism Research Initiative (SFARI) Director of Clinical Research. Dr. Chung’s presentation is a concise, informative review of what we know about autism, what we don’t know, and what definitely has been proven false.

Image

Dr. Wendy Chung

Some of the information that I found fascinating included:

– Genes play a larger role in autism than they do in cancer, heart disease, or diabetes

–  25% of cases with autism are caused by a genetic mutation that was neither possessed nor transmitted by the parent but occurred in the egg, the sperm, or both

– There is not one gene for autism but 200 to 400 different ones that can cause autism. Understanding how the genes work together will be the key to treating autism.

Image

Full interaction network with ASD genes highlighted

– An eye-tracking tool measuring a baby’s eye movement as he/she watches a video of a person speaking is being used by researchers to analyze whether the baby has trouble making eye contact and thereby is more likely to develop autism

Image

Interaction between ASD genes.

As Dr. Chung so clearly states, “as much as we know, there is so much more that we don’t know”. I’d encourage you to take the 15 minutes and watch the video, tell your friends about the talk, and together we can increase autism awareness not just in April but throughout the entire year. If you know a person or family living with autism, encourage them to join the Interactive Autism Network (IAN). Much more research and information is needed and if we are to help people on the spectrum live their best lives.

 

Posted in Uncategorized | Tagged , , , , , , , | Leave a comment

iPads TRR_0588ehave created a buzz among families raising a child with autism. A child who is unable to speak can only express his needs and wants through behavior.  For example, a child could take a parent’s hand and walk him to the refrigerator or he/she could be a temper tantrum.  With the explosion of technology many parents are asking the question “can a technology device such as the iPad help my child learn language?”

At the BNI we have seen significant improvements in language in our students when the iPad is used in conjunction with therapy. However, I am always looking to research to support educational practice. Therefore I was pleased to see that research teams at UCLA, Vanderbilt and Kennedy Krieger had tested a developmentally based behavioral intervention approach for teaching language using the combination of spoken language and speech generating devices (SGD) including iPads.  They found that in a group of 62 children over a nine month period using the SGD the researchers saw significantly greater improvement in spoken language in comparison to the same intervention without access to the SGD.  Over time many of the children decreased their use of SGD because spoken language was quicker and more efficient.

Here are some suggestions and tips to help you incorporate the iPad at home:TRR_0065

  • If possible have one iPad for communication and another for leisure skills/entertainment.  We’ve done this in the classroom because we have found that if the child is using it as a reinforce it is very difficult to get him to maintain attention to a task.  An inexpensive way is to have different colored covers for the iPad.
  • The application Proloquo2go.com was used in this study.  We did not find this app to be appropriate for many of our students so this led us to explore LAMP, ArtikPix and this list of articulation apps.  BNI’s speech therapist cautions that there are so many apps available to help children learn speech; however, many of them are not developed by speech-language pathologists. Parents should look for apps specifically designed by licensed and trained speech-language pathologists.  These apps should not be used in place of a SLP, but should instead be used as a way for parents to work on generalization/carry over of skills.
  • Be flexible.  Choose an activity that your child really enjoys and have an alternative in mind when he loses interest in the game and communicating.
  • Take advantage of this great opportunity for turn taking, a skill many children need to develop.
  • Verbalize or use your language to describe the pictures your child is seeing on the screen.  Take advantage of using prepositions to describe the location of the object.
  • Limit the iOS device to stay on one app by disabling the Home button – please email me for step by step instructions on how to do this.

TRR_0005As someone who is taking baby steps to become technology literate I encourage you to do the same. There is a world of opportunity out there for our children.  Just reach out and ask for help.  Please share with us any of your thoughts on iPads and communication.

 

 

 

Posted on by all about autism | Leave a comment

Landmark Agreement Helps Adults With Disabilities Enter the Competitive Workplace

Last week the Justice??????????????????????????????? Department announced a “landmark” agreement with the state of Rhode Island, which was found to have violated the Americans with Disabilities Act by segregating adults with disabilities in workshops and day facilities. Over the next ten years Rhode Island is required to:

  • Assist these adults in securing typical jobs in the community that pay at least minimum wage with the flexibility of remaining in the workshop if they so prefer.
  • Support non-work activities in the mainstream (i.e. libraries, recreational facilities).
  • Prepare high school students with developmental disabilities for competitive jobs in the community through internships and mentoring programs.

Public funding that had been utilized to support segregated environments is to be redirected toward services in integrated settings. It is anticipated that the settlement will provide a roadmap to compliance for all states.

This consent decree came as a result of an investigation of the Providence Training Through Placement program by the federal Labor Department. The investigation found abuse of a federal law that allows the payment of subminimum wages.  In addition, many workers had expressed interest in securing employment in a competitive workforce but had been ignored.

On a similar note, researchers at Vanderbilt ????????University and the University of Wisconsin/Madison examined 150 adults with autism. This study, published in the Journal of Autism and Developmental Disorders, found that more independent work environments may lead to reduction in autism symptoms and improvement in daily living skills.

For these reforms to be successful, businesses must support expanded training and employment of persons with disabilities. A positive outgrowth was the announcement that the U.S. Business Leadership Network, which includes Fortune 500 companies and Walgreens, will sponsor a summit meeting in June 2014 to engage the business world in these efforts.

Advocates for adults with disabilities will be closely monitoring these developments in the upcoming months. If you’re a business person and would be open to the possibility of hiring a person with disability there are a wide range of programs available to assist you.  For more information on how our Employment Specialists can assist adults with developmental disabilities in finding employment & meeting the needs of employers contact: myself, Steve Davis at SteveD@barberinstitute.org or Maggie Dimitriadis at MaggieD@barberinstitute.org.

Here are just a few testimonials:SONY DSC

  • “The Barber Institute has a wonderful job coaching program that helps individuals gain their independence and become successful Wal-Mart Associates.” Lori – Wal-Mart, Human Resources Office.
  • “[The individual placed is a] conscientious employee that appreciates his job. Richard – Girard Dinor, Owner.
  • “I wanted to take a second to let you know how valuable your services are to our organization. Our employee that you have coached and trained is second to none . . . I would also strongly encourage any of my peers and colleagues to take advantage of the supported employment services offered by the Barber National Institute. They definitely won’t be disappointed!” Janet – Forestview Nursing Home, Dining Supervisor
Posted in Uncategorized | Tagged , , , , , , , , | Leave a comment

Hoppy Easter!

IMG_3781This blog may seem a little familiar.  It was one of my first blogs posted on April 5, 2012 yet it is still relavent today so I wanted to share it again.

While holidays are filled with joyful memories, they can also bring added stress for parents. Changes in schedules, visits to unfamiliar sites and meeting new people can lead to challenging behaviors in some of our children. In thinking about the upcoming Easter weekend, I wanted to share a few tips that I have learned over the years:

Avoid Easter Egg Hunts that involve hundreds of children. The noise, distractions, and unfamiliar faces can lead to anxiety in some children. What you hope to be a fun, positive experience, quickly can turn in the other direction.

Make a reasonable schedule. One or two visits to relatives’ homes may be as much as your child can handle. Keep the visit time limited. If you are going for dinner, arrive right before and depart soon after. IMG_3714Don’t plan on spending 2 or 3 hours in unstructured time. Follow your usual schedule for most of the day and then go on your visit.

Practice makes ease. Write social stories days in advance and practice the skills you want your child to demonstrate. This could be simply walking up to each person, shaking hands, and saying, “Happy Easter!”

Use visual aids. Give your child a visual schedule of what the visit will look like. This could also be done with pictures.

i.e.: 4:30 p.m. – Leave home

5:15 p.m. – Arrive at grandma’s home

5:15-5:40 p.m. – Visit

5:40-6:00 p.m. – Eat Dinner

IMG_35326:00-6:30 p.m. – Take a break. If it’s a beautiful day go for a walk, some outdoor play, or watch your child’s favorite DVD.

6:30 p.m. – Eat Dessert

6:30 p.m. – Depart

Comfort Zone: Take your child’s favorite toy, book, or iPad to the party. Identify a quiet room in the house that your child can use for a break. When you arrive, show your child the room and explain the room’s purpose.

Work as a team. If you and a spouse or a friend are attending the event together, drive two cars. If you need to leave early with your child, then the rest of the family can stay until the end. You won’t feel guilty that the rest of the family is missing out.

Use a tag-team approach. Ask a few family members who understand your child’s situation if they would give you a break and stay with your child so that you can visit with your family.

Take your time. If you are responsible for Easter dinner, take a vacation day or two IMG_3547prior to the holiday so that you can prepare while your child is at school. If family members offer to bring a dish, take them up on it. If you are going to someone’s house, be sure to explain to them your child’s diet restrictions, as well as preferences.

Keep your child engaged. Involve your child in some aspect of dinner preparation, such as coloring place cards, writing a holiday prayer, hanging up coats, etc. Make a job list for your child to complete and have him or her cross jobs off as they are finished.

If the day goes well, congratulate yourself. Make a list of what you did that helped your child to be prepared and any ideas you can use for future holidays.

– Forgiveness brings peace.

If the day is challenging when you go to bed:

  • Forgive yourself for any negative feelings you have.
  • Forgive your child for his or her behavior.
  • Forgive your friends and family for not having the patience and understanding you have.

Holidays will always bring stress. But with good planning, you may actually begin to look forward to them.

Next week I will be discussing the landmark court case in Rhode Island.

Happy Easter!

Posted in Uncategorized | Tagged , , , , , , , , , , , , , | Leave a comment