“Best Buddies” Connects Kids

Start looking for a series of billboards popping up across the country in an effort to promote acceptance of people with intellectual disabilities.  The campaign is sponsored by Best Buddies, a national non-profit organization that fosters one-on-one friendships between those with and without disabilities.  Best Buddies has programs in all 50 states and on six continents.  Founded in 1989 Continue reading

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Autism News: Medication Announcement

Yesterday, pharmaceutical giant, Roche, announced a partnership with Seaside Therapeutics to speed up the development medications for use in the treatment of autism.  Click below to read more about the collaboration:

New Alliance for Developing Autism Medication

For those of you in the Erie area, Joseph Barber, M.D., a  pediatrician and pediatric neurologist in Erie, PA, will be presenting the second seminar in his series on autism, titled “Medication Continue reading

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Update on Findings in Autism Studies

I’d like to highlight two reports that I found highly relevant to the autism community. 

First, a study published by Dr. Antonio Hardan of the Stanford University School of Medicine and Lucille Packard Children’s Hospital found that an anti-oxidant supplement, N-Acetylcysteine, might be an effective therapy for some symptoms of autism.  Researchers found that this anti-oxidant lowered irritability in children with autism as well as reducing their repetitive behaviors.  These behaviors included throwing, Continue reading

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Have You Volunteered Lately?

I would like to share a few thoughts about the importance of volunteerism in our society today.  The need for services for children and adults with autism is growing exponentially while funding is significantly declining.  Each of us should ask the question: What can I do to help? 

Volunteerism – Then & Now

Volunteerism has been interwoven in our society for hundreds of years. The notion of volunteerism has been exemplified in the U.S. since the early days of barn raisings and quilting bees. Women notably led volunteer efforts. Social problems such as nursing the sick, antislavery, prison reform, illiteracy and suffrage are examples of traditional women-dominated volunteer roles.

According to the US Bureau of Labor Statistics, people who are 35 years or older are 50% more likely to volunteer than those under the age of 35.  This is surprising since the 20 somethings are beginning their careers and would significantly benefit from the networking, skill building, and leadership development that occur through volunteerism. 

Volunteerism Matters

Following completion of graduate school, I returned to Erie with minimal contacts.  I joined the Junior Continue reading

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Meet the Robots

Dan Portenier, left, selects responses for the robot while Jennifer Zona directs the therapy session.

On Thursday, June 14, we will be presenting, “Conversation with Brendan:  Robots, Grandkids and Autism.”  For those who will not be able to attend, I thought I would provide you with a brief update on the project. 

Planning for the project began last fall when Jen and Dan traveled to Notre Dame to meet with Joshua Diehl, PhD, professor and primary investigator in this study.  Preparation continued throughout Continue reading

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Surviving Summer Travels

Now that summer vacation is almost upon us, I thought I would share a few tips about traveling, as many of us save our “trips” for this time of the year.  Whether you are traveling by car or by airplane, there are ways to make it easier for both you and your child.

  • Prepare your child for the trip far in advance.  In our family, I like to have a schedule of June, July and August so Continue reading
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Update: Student Eligibility

In an April blog, I discussed how Eric Dompierre, a 19-year old student with Down Syndrome, might not be eligible to play football and basketball during his senior year of high school because of the age limit for sports eligibility in Michigan.  Under the previous language, students in Michigan who turn 19 before September 1st were prohibited from playing sports for the full academic year. 

Michigan students meeting the following requirements will now be able to formally file a waiver request with the Michigan High School Athletic Association (“MHSAA”): Continue reading

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Pull-to-Sit Test

We all know the importance of early intervention for children with autism. We are constantly striving for earlier and more accurate diagnosis. That is why there is such interest from the wire services in a study that demonstrated weak head and neck control in babies may also be an early sign of autism.

Most of the screening tools for very young children look at language (babbling), eye contact, social behaviors and repetitive behaviors. So, what is new about this study Continue reading

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Updates from IMFAR

The International Meeting for Autism Research (IMFAR) was held this month in Toronto.  This meeting attracts nearly 2,000 participants and presents research from basic science to potential new treatments.  Since few of us have the opportunity to attend these innovative sessions, I thought that I would try to review some of the presentations that may be of interest to all of us.  Continue reading

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What Factors Increase the Risk of Autism?

There is much discussion among those in the autism community about certain factors that may increase the risk of autism. Many theories and studies are out there – genetics, prenatal environment, vaccines – the list goes on and on. Recently, however, I’ve had a number of people ask me for more specifics as to the increase risk of autism associated with older fathers. 

In a study published in February, the researchers analyzed almost 5 million births in California during the 1990’s with 12,159 of those cases being children diagnosed with autism. In the study, Continue reading

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