Emergency Preparation: Are We Ready?

Candles and batteries: Not the only materials needed when preparing for a hurricane, especially if you are the parent of a child with autism.

The wind whipped through the trees, rain pelted the windows and I wondered how prepared our families are for an unusual weather occurrence. Living in Erie, PA, we seldom consider disaster preparedness. Snow storms dumping two feet of snow are not rare; however, as Hurricane Sandy advanced up the east coast, I began to consider what I should be doing to prepare. Continue reading →

Posted in Uncategorized | Tagged , , , , , , | Leave a comment

7 Tips for Successful Trick-or-Treating

It’s a sunny, warm Thursday in Erie today. Looking out the window, one would guess that the Fourth of July, not Halloween, is approaching.  However, as I walk though the school I’m reminded that this is October.

Our school is decorated in spooktacular fun with goblins, pumpkins and spiders while Happy Halloween banners drape the halls. As the school prepares for the annual Halloween Parade, I’m reminded of how important preparation is for this holiday. I’m also reminded of one of Ryan’s favorite Halloween costumes…Big Bird!

It’s important to plan for Halloween as this is a change in routine and as we all know, change has the potential to become a challenging situation. Below are some tips that I learned after both positive and challenging trick-or-treating evenings with my son.

  • Read a few books about Halloween activities, trick-or-treating, carving pumpkins and wearing costumes. This will prepare your child for the evening.
  • Go costume shopping with your child:

– It’s always best to choose one that reflects his/ her interests. When Ryan was a preschooler, he was Thomas the Train and Superman, but as he got older, he chose to be a ghost for a number of years.

– Practice wearing the costume. If a costume doesn’t work, ask if he/she would rather wear face paint, a hat or a mask.

– No costume is okay too.

  • Keep it short:

– After experiencing a challenging Halloween, I decided to limit our trick-or-treating to two homes.  Ryan and I only visited my sister Mary Beth and friend Jeanne. This kept it short and sweet and avoided the candy battle.

– Know your limits. As soon as you see your child becoming over-stimulated or agitated, it’s time to go home.  It’s okay the end the evening.

  • Create a schedule:

– Write down exactly what will happen. Our evening looked like this: Eat dinner, dress in costume, review safety rules, trick-or-treat at Mary Beth’s and Jeanne’s houses, return home and enjoy the treats

  • Role play for the evening: This provides a structure and outlines specific behavior for trick-or-treating.

– Ring the doorbell

– Say “trick-or-treat” and/or hold up your trick-or-treat bag

– Let the neighbor put the treat in your bag

– Say or sign “thank you”

  • Dietary restrictions:

– A special diet requires special treats. What worked best for Ryan was fruit and money. I alerted my sister and friend to this so that they could be prepared. If you do go door-to-door, have some appropriate treats for your child at home to quickly exchange for what he/she collected.

  • Safety rules: Review the safety rules with your child. Some that I always stressed were:

– Hold hands or walk side by side

– No running

– Stay with mom

*A great safety tip is to have your child wear a glow necklace and/or bracelet.*

Keep in mind that there are alternatives to trick-or-treating. If you know your child’s not ready, it’s just as fun to stay home and pass out treats, read a story or watch a movie. Halloween comes once a year, so have fun, be creative, take pictures, laugh and enjoy!

 

Posted in Uncategorized | Tagged , , , , , , , , , , , | Leave a comment

The Power of a Word

Have you ever used the word “retarded” to describe a child or an adult that you know? Have you ever heard someone else use it as slang in conversation?

When I was teaching in the 80s, special education was thought to be teaching the “retards.” It was common language that wasn’t meant as derogatory, it was just considered a statement of fact.

Continue reading →

Posted in Uncategorized | Tagged , , , , , , , , , , , , , , , , , | 6 Comments

Planning & Prevention Tips for Children with ASD

As discussed in Tuesday’s blog, 50% of children with autism spectrum disorder wander. Today, I encourage you as parents and caregivers to be prepared and establish a plan should this occur with your child. As a parent, you can never be overly prepared. Of course, much depends on your child’s age and functioning. Here are 7 tips to guide you in developing your plan. Continue reading →

Posted in Uncategorized | Tagged , , , , , | Leave a comment

Children with ASD & Wandering: A Compelling Research Study

Did you know that 50% of children with ASD have attempted to wander or run off at least once after the age of four? This statistic is shocking but very real. Truth be told, Ryan and I are a part of this statistic.

This past weekend Ryan and I enjoyed our visit to the University of Notre Dame. Of course, any visit to Notre Dame requires you to purchase memorabilia in the book store. Walking into the book store reminded me of our visit a few years ago when Ryan wandered off. This experience isn’t unlike that of many mothers of both typical children and children with autism. However, recent research findings on wandering and children with autism are startling: Continue reading →

Posted in Uncategorized | Tagged , , , , , , , | 5 Comments

“I see you, as a classmate, as an equal, as a friend. Do you see me?”

Dorian Smith, Best Buddies PA director; Maureen Barber-Carey, executive vice president of the Barber National Institute; Ryan Christy, chair, Best Buddies Pittsburgh Advisory Board

Best Buddies International came to Erie last night. Dorian Smith, director of Best Buddies PA, and Ryan Christy, chair of the Pittsburgh Best Buddies Advisory Board, discussed with us how we as a community could become a Best Buddies chapter.  Continue reading →

Posted in Uncategorized | Tagged , , , , , , , | 2 Comments

e-Buddies Creates Lasting Friendships

Happy Anniversary to Ryan and his e-Buddy Victoria!  Ryan became involved with the e-Buddies program, sponsored by Best Buddies, just over a year ago.  At the time, I was investigating the Best Buddies program and learned that there wasn’t a chapter in Erie. I then discovered e-Buddies, an email pen pal program between persons with special needs over 10 years of age and peer volunteers from all across the United States. It was a fun, safe way to make a new friend in a secure online setting. Continue reading →

Posted in Uncategorized | Tagged , , , | Leave a comment

National Disability Employment Awareness Month

In Tuesday’s blog I wrote about my son Ryan’s Workforce Training Program at the Barber National Institute as the first step on his journey to employment.  For persons with disabilities, this journey is challenging.  We have included persons with disabilities in our schools, yet there remains a lack of inclusion in the workforce.  According to the U.S. Bureau of Labor Statistics (BLS) news release issued June 8, 2012, only 18% of persons with Continue reading →

Posted in Uncategorized | Tagged , , , , , | 2 Comments

New Dreams for My Son

When I learned that my son Ryan was diagnosed with autism at the age of two, many things changed. I now had a better understanding of some of the behaviors that he had exhibited prior to the diagnosis. He enjoyed opening and shutting doors, whether it was the microwave, refrigerator or his closet. He would be content to do so unless interrupted. Rather than the traditional schedule for a two year old, Ryan began an intense Applied Behavior Analysis (ABA) program during the day, evenings and weekends. We knew that he would make the most progress if he was working on the same skills every waking hour. We set language, cognitive and social goals for him and always kept the bar high and encouraged him. However, I knew the dream I had for him to continue the Barber family tradition and attend Notre Dame was no longer possible.

Today, sixteen years later, he is now training with our Transitional Work Service Program at the Barber National Institute. He is very interested in landscaping and maintenance and plans to focus in these areas.  He has a strong work ethic and is already planning to get a job at the Erie County Courthouse, Police Barracks, St. Patrick’s Church and the Quinn Law Offices. He has goals. As Ryan works towards his long term vocational goals, I am reminded of how important it was that we started this transition planning when he was 13.

Through my experience both personally and professionally, I strongly encourage you to keep transition in the forefront of your child’s education. It’s never too early to consider and begin establishing IEP goals. A functional curriculum is essential for all ages. It is at the age of 13 that IEP teams need to be considering employment, post secondary education, and community living. You may be thinking that your child will not graduate until he or she is 18 or 21, so why the rush? You need all of those years to adequately prepare for what happens after graduation and secure funding. Too often, I talk with parents who expected programs for their young adult to materialize and are now dismayed that nothing is available.  Resources are available through your child’s teacher, transitional coordinator for your school, and via Autism Speaks.

When I asked Ryan how was his first day, he replied, “My first day was exciting, and I’m earning my list of job sites.” (Erie Courthouse, Police Barracks, etc.).

The initial dream of attending Notre Dame will not happen, but it has been replaced by new dreams that are now coming true.  I look forward to keeping you updated on his progress. I am so proud of Ryan and his many, many accomplishments!

Posted in Uncategorized | 4 Comments

Grow Up Great Continues Promoting Early Childhood Education

I’m traveling to Cleveland today to participate in the Grow Up Great Advisory Council meeting.  The Advisory Council is comprised of respected leaders within the early childhood field and provides strategic guidance to PNC on this project.

Grow Up Great is a bilingual, $350 million initiative that began in 2004 to help prepare children under age five for success in school and life.  To date, the program has served 1.5 million children throughout its footprint in 15 states and the District of Columbia.

The agenda for the two-day meeting includes topics ranging from the PNC Grow Up Great-Sesame Workshop Collaboration, Measuring and Communicating the impact of Grow Up Great. I will also be attending the opening of the PNC Fairfax Connection Program and am looking forward to sharing with you what I learn next week.

Hats off to PNC for its continued commitment to early childhood education!

Posted in Uncategorized | 2 Comments