My Hope

Remember to contact your legislators in order to advocate for individuals with disabilities.

As fast as the political campaigning began, it ended.  To be honest, I’m happy the barrage of political ads that seemed to envelope the media has ended. What a difference a few days can make.  However, even though the elections are over; our work has just begun.  There are very important issues confronting our country today, especially the fiscal cliff, which is right around the corner.  So, it’s important for us to consider the question, “Will we reach out to our legislators locally, statewide and nationally?”

As an educator, Continue reading

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Voting: All People Have a Voice

It’s Election Day!  Whether Democrat, Republican or Independent, it’s a day when our voices get to be heard as we vote in local and national races.  Ryan and I decided to vote early today with hopes of avoiding the crowds at the polling station. So, at 7:30 a.m., right after our workout, we made our way to the Millcreek Youth Association Office to cast our ballots. Even though we had to wait, I was pleased to see the large crowd of voters.

As the voting season amped up and I read more information regarding local and national candidates, I came across intriguing information regarding voting and persons Continue reading

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Artist Makes Dreams Come True for Students

Dharma doing an arm stretch in his class’s exercise video session.

Disney has Mickey and Pixar may have Nemo, but only the Elizabeth Lee Black School at the Barber National Institute in Erie, PA has Dharma, Angelina and Mackenzie.  These are just a few of the 60 students who became stars using stop motion animation and other computer generated techniques led by artist Jude Shingle as part of the Artist-in-Residence program.  

Jude holds a BA in studio Continue reading

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Emergency Preparation: Are We Ready?

Candles and batteries: Not the only materials needed when preparing for a hurricane, especially if you are the parent of a child with autism.

The wind whipped through the trees, rain pelted the windows and I wondered how prepared our families are for an unusual weather occurrence. Living in Erie, PA, we seldom consider disaster preparedness. Snow storms dumping two feet of snow are not rare; however, as Hurricane Sandy advanced up the east coast, I began to consider what I should be doing to prepare. Continue reading

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7 Tips for Successful Trick-or-Treating

It’s a sunny, warm Thursday in Erie today. Looking out the window, one would guess that the Fourth of July, not Halloween, is approaching.  However, as I walk though the school I’m reminded that this is October.

Our school is decorated in spooktacular fun with goblins, pumpkins and spiders while Happy Halloween banners drape the halls. As the school prepares for the annual Halloween Parade, I’m reminded of how important preparation is for this holiday. I’m also reminded of one of Ryan’s favorite Halloween costumes…Big Bird!

It’s important to plan for Halloween as this is a change in routine and as we all know, change has the potential to become a challenging situation. Below are some tips that I learned after both positive and challenging trick-or-treating evenings with my son.

  • Read a few books about Halloween activities, trick-or-treating, carving pumpkins and wearing costumes. This will prepare your child for the evening.
  • Go costume shopping with your child:

– It’s always best to choose one that reflects his/ her interests. When Ryan was a preschooler, he was Thomas the Train and Superman, but as he got older, he chose to be a ghost for a number of years.

– Practice wearing the costume. If a costume doesn’t work, ask if he/she would rather wear face paint, a hat or a mask.

– No costume is okay too.

  • Keep it short:

– After experiencing a challenging Halloween, I decided to limit our trick-or-treating to two homes.  Ryan and I only visited my sister Mary Beth and friend Jeanne. This kept it short and sweet and avoided the candy battle.

– Know your limits. As soon as you see your child becoming over-stimulated or agitated, it’s time to go home.  It’s okay the end the evening.

  • Create a schedule:

– Write down exactly what will happen. Our evening looked like this: Eat dinner, dress in costume, review safety rules, trick-or-treat at Mary Beth’s and Jeanne’s houses, return home and enjoy the treats

  • Role play for the evening: This provides a structure and outlines specific behavior for trick-or-treating.

– Ring the doorbell

– Say “trick-or-treat” and/or hold up your trick-or-treat bag

– Let the neighbor put the treat in your bag

– Say or sign “thank you”

  • Dietary restrictions:

– A special diet requires special treats. What worked best for Ryan was fruit and money. I alerted my sister and friend to this so that they could be prepared. If you do go door-to-door, have some appropriate treats for your child at home to quickly exchange for what he/she collected.

  • Safety rules: Review the safety rules with your child. Some that I always stressed were:

– Hold hands or walk side by side

– No running

– Stay with mom

*A great safety tip is to have your child wear a glow necklace and/or bracelet.*

Keep in mind that there are alternatives to trick-or-treating. If you know your child’s not ready, it’s just as fun to stay home and pass out treats, read a story or watch a movie. Halloween comes once a year, so have fun, be creative, take pictures, laugh and enjoy!

 

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The Power of a Word

Have you ever used the word “retarded” to describe a child or an adult that you know? Have you ever heard someone else use it as slang in conversation?

When I was teaching in the 80s, special education was thought to be teaching the “retards.” It was common language that wasn’t meant as derogatory, it was just considered a statement of fact.

Continue reading

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Planning & Prevention Tips for Children with ASD

As discussed in Tuesday’s blog, 50% of children with autism spectrum disorder wander. Today, I encourage you as parents and caregivers to be prepared and establish a plan should this occur with your child. As a parent, you can never be overly prepared. Of course, much depends on your child’s age and functioning. Here are 7 tips to guide you in developing your plan. Continue reading

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Children with ASD & Wandering: A Compelling Research Study

Did you know that 50% of children with ASD have attempted to wander or run off at least once after the age of four? This statistic is shocking but very real. Truth be told, Ryan and I are a part of this statistic.

This past weekend Ryan and I enjoyed our visit to the University of Notre Dame. Of course, any visit to Notre Dame requires you to purchase memorabilia in the book store. Walking into the book store reminded me of our visit a few years ago when Ryan wandered off. This experience isn’t unlike that of many mothers of both typical children and children with autism. However, recent research findings on wandering and children with autism are startling: Continue reading

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“I see you, as a classmate, as an equal, as a friend. Do you see me?”

Dorian Smith, Best Buddies PA director; Maureen Barber-Carey, executive vice president of the Barber National Institute; Ryan Christy, chair, Best Buddies Pittsburgh Advisory Board

Best Buddies International came to Erie last night. Dorian Smith, director of Best Buddies PA, and Ryan Christy, chair of the Pittsburgh Best Buddies Advisory Board, discussed with us how we as a community could become a Best Buddies chapter.  Continue reading

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e-Buddies Creates Lasting Friendships

Happy Anniversary to Ryan and his e-Buddy Victoria!  Ryan became involved with the e-Buddies program, sponsored by Best Buddies, just over a year ago.  At the time, I was investigating the Best Buddies program and learned that there wasn’t a chapter in Erie. I then discovered e-Buddies, an email pen pal program between persons with special needs over 10 years of age and peer volunteers from all across the United States. It was a fun, safe way to make a new friend in a secure online setting. Continue reading

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