All About Autism

The Elizabeth Lee Black School hosted a heartwarming Graduation Day celebration on Tuesday, June 10, acknowledging the achievements of students across both high school and early childhood education programs. This special event symbolized a significant milestone in the lives of all graduates and their families. 

The high school graduation ceremony commenced at 12:30 p.m., paying tribute to students who have grown up with the school, many starting as preschoolers. These exceptional individuals, now ready to embrace new opportunities, are moving forward into employment, volunteer roles, or simply enjoying life beyond school. Their accomplishments represent years of dedication and perseverance, and the celebration honored five outstanding high school graduates. 

Later in the day, at 3:00 p.m., the focus shifted to the early childhood education graduates, including those from the Pre-K Counts and Happy Hearts programs. These young learners showcased creativity, curiosity, and readiness for the next steps in their educational journey. Notable among this group were twenty-six graduates from the Pre-K Counts Erie Program, four graduates from the Happy Hearts program, and nine from the Pre-K Counts Corry program. 

The Elizabeth Lee Black School remains steadfast in its commitment to serving as a lifelong resource for its graduates, offering guidance and support as they navigate their futures. The graduates and their families will continue to be members of the Barber National Institute Family. This dedication underscores the school’s mission to nurture bright paths for each student. 

The academic year concluded on Friday, June 13, marking the start of a well-deserved summer break for students and classroom staff. However, the school continues to foster learning and development through the Extended School Year (ESY) program, which begins on Tuesday, July 1, and runs until Friday, August 1. ESY provides students with opportunities to enhance critical academic and social skills while incorporating engaging outdoor activities that encourage movement, play, and positive interactions among peers and staff. 

Through these initiatives, the Elizabeth Lee Black School celebrates milestones, ensures continued growth, and builds a solid foundation for lifelong learning, making each moment of their journey meaningful and impactful. 

A number of years ago, I became aware of this registry, signed Ryan up, and encouraged others to do so.  I recently again saw this information and while reading it I saw that you must reregister every three years.  So, I did!   I would encourage you to pass on this information as well.  

Emergencies can be particularly challenging for individuals with special needs, and ensuring their safety requires careful planning and preparation. The 911 Special Needs Registry (SNR) is a vital tool designed to help first responders be better prepared to assist individuals with special needs during emergencies. This registry serves households and group homes, including children with special needs, individuals with disabilities, chronic illnesses, mental health disorders, older adults needing extra assistance, and non-English speakers. 

Why Families Should Consider Enrolling 

Enhanced Emergency Response: The primary benefit of the 911 SNR is that it helps first responders understand the specific needs of individuals with special needs before they arrive on the scene. This knowledge allows them to provide more effective and tailored assistance, ensuring that the unique requirements of everyone are met promptly and appropriately.  

Peace of Mind: For parents, guardians, and caregivers, knowing that first responders are aware of their son or daughter’s special needs can provide significant peace of mind. In the event of an emergency, this information can make a critical difference in the quality of care and support provided.  

Inclusive Support: The registry is open to all age groups and includes individuals with a wide range of needs, from physical and mental disabilities to chronic illnesses and language barriers. This inclusiveness ensures that everyone who may require extra support during an emergency is considered.  

Regular Updates: Information in the registry is retained for three years, after which re-registration is required. This ensures that the data remains current and relevant, allowing first responders to have the most accurate information available  

How to Enroll 

Enrolling in the 911 Special Needs Registry is a straightforward process: 

Visit the Registration Website: Go to the 911 Special Needs Registry Page and complete the online form.  

Parents, authorized guardians, or someone with power of attorney can register on behalf of individuals who cannot do so themselves. Information is retained for three years. After three years, you will receive an email reminder to re-register.  

Conclusion 

The 911 Special Needs Registry is an invaluable resource for ensuring the safety and well-being of individuals with special needs during emergencies.   Take the time to register today and contribute to a safer, more prepared community. 

For more information or assistance with the registration process, please contact Forrest List, Public Health Preparedness Coordinator, or Mary Johnson, Public Health Program Coordinator at eriecountypa.gov/health.  

Amy Dean, a Homeschool teacher and advisor, shared with me an article that a student found which is relevant for all who are considering home schooling a child with autism.  She asked that I share it as she thought it was a good resource.   I agree.  Please see the article below. 

 Homeschooling can be a rewarding and effective educational approach for children with autism. It offers the flexibility to tailor learning experiences to each child’s unique needs, providing a calm and supportive environment. If you’re considering homeschooling your child with autism, the “Ultimate Homeschool Toolkit for Kids on the Spectrum” from ABA Masters Programs is an invaluable resource. Here’s a comprehensive overview of the key strategies, schedules, and support systems that can help your child thrive. 

Understanding Autism Spectrum Disorder (ASD) 

Autism Spectrum Disorder (ASD) is a neurological and developmental disorder that affects how individuals interact with others, communicate, learn, and behave. Symptoms of autism can vary widely, making it essential to understand each child’s specific needs. Some children may struggle with social interactions, transitions, and sensory issues, while others may have higher or lower support needs. Regardless of where a child falls on the spectrum, every individual with autism has inherent value and potential. 

Key Strategies for Homeschooling Children with Autism 

1. Personalized Learning Plans: One of the primary benefits of homeschooling is the ability to create a customized curriculum that meets your child’s unique needs and skill level. Tailoring lesson plans to your child’s strengths and interests can make learning more engaging and effective. 

2. Structured Schedules: Consistency and routine are crucial for children with autism. Establishing a structured daily schedule can help reduce anxiety and provide a sense of security. Include regular breaks and sensory activities to help your child stay focused and calm. 

3. Behavioral Support: Applied Behavior Analysis (ABA) and other behavioral therapies can be integrated into your homeschooling routine to help your child develop social, communication, and daily living skills. Consistent reinforcement of positive behaviors can lead to significant progress. 

4. Speech and Occupational Therapy: Incorporating speech and occupational therapy into your homeschooling plan can address communication challenges and help your child develop fine motor skills and daily living abilities. These therapies can be provided by professionals or through guided activities at home. 

5. Support Groups: Connecting with other homeschooling families and support groups can provide valuable resources, advice, and a sense of community. Sharing experiences and strategies with others who understand your journey can be incredibly beneficial. 

Creating a Supportive Learning Environment 

A calm and supportive learning environment is essential for children with autism. Here are some tips to create an optimal homeschooling space: 

• Minimize Distractions: Choose a quiet, clutter-free area for learning. Use visual schedules and clear instructions to help your child understand what to expect. 

• Sensory-Friendly Tools: Incorporate sensory-friendly tools and activities into your homeschooling routine. This can include fidget toys, weighted blankets, and sensory breaks to help your child regulate their sensory input. 

• Positive Reinforcement: Use positive reinforcement to encourage desired behaviors and celebrate your child’s achievements. Consistent praise and rewards can motivate your child and build their confidence. 

Conclusion 

Homeschooling offers a unique opportunity to provide a personalized and supportive education for children with autism. By utilizing the strategies and resources outlined in the “Ultimate Homeschool Toolkit for Kids on the Spectrum,” you can help your child reach their full potential. Remember, every child with autism is unique, and with the right support and guidance, they can thrive in a homeschooling environment. 

To access this highly useful information, click on the following link:  

www.abamastersprograms.org/ultimate-homeschool-toolkit-kids-with-autism/ 

I had the distinct honor of speaking at the Project SEARCH graduation held on the campus of AHN St. Vincent Hospital last week.  

Project SEARCH is proudly supported by local sponsors including AHN St. Vincent Hospital, the Erie School District, the Office of Vocational Rehabilitation, Erie County Department of Human Services, and the Barber National Institute. 

Project SEARCH began almost 30 years ago at Children’s Hospital in Cincinnati. It was designed to assist students with disabilities in their final year of school as they transition to the workforce. Students participate in the program for a full school year at the host business (AHN St. Vincent), where they immerse themselves in the organization’s culture, explore various job opportunities, and contribute as team members. Through worksite rotations, supportive job coaching, and individualized career exploration, students receive hands-on training. This training facilitates the development of essential skills in communication, problem-solving, technology, and team building. These competencies are vital for securing employment post-graduation. 

Project SEARCH also benefits employers by fostering a diverse and inclusive work culture. Organizations that employ individuals with disabilities gain the advantage of varied perspectives and ideas, which contribute to a more resilient, innovative, and adaptable workforce. Much has been written about the numerous benefits of employing people with disabilities, and a workforce reflecting the diversity of the community is strong and vibrant.  

When Dr. Barber established the Barber Center over 70 years ago, the goal was for all individuals to become active participants in their community and be recognized as valued contributors. What was once a dream is now a reality, thanks to initiatives like Project SEARCH. 

In May, we celebrate National Speech-Language-Hearing Month.  

At the Elizabeth Lee Black School, our exceptional speech-language pathologists (SLPs) ensure students have access to the communication tools that best meet their needs, including augmentative and alternative communication (AAC). AAC encompasses all forms of communication, except for oral speech, that are used to express wants, needs, thoughts, feelings, and ideas. Many of our students have complex communication needs and require alternate ways to communicate. The use of AAC allows individuals the opportunity to become more independent and efficient communicators with those around them.  

We generally classify AAC devices into three categories: Low-tech, Mid-Tech, and Hi-Tech.  

Examples of AAC: 

• Low-tech 

• Picture Exchange Communication System (PECS)  

• Core communication boards  

• Activity-based communication boards  

• Mid-tech 

• Big Mack 

• Step-by-Step  

• Go Talk  

• High-tech  

• iPad with communication software  

• eye gaze technology 

Benefits of AAC 

• Increased Language Opportunities: AAC encourages social interaction and language development by providing students with more ways to communicate with classroom staff, peers, and family. 

• Improved Communication: Students can better express themselves and feel included in all classroom and social activities. 

• Empowerment and Independence: Access to AAC builds confidence and allows students to communicate their needs and ideas more effectively. 

We are so fortunate to have SLPs who are highly experienced and trained so that they can bring AAC to our students. 

Check out the photos below to see AAC in action! 

Diego uses a dedicated voice output communication device to talk about brushing teeth during a speech session during Dental Health Month. 

Robby uses his communication device during a social activity to request his turn during Crocodile Dentist game 

These students are using three very different types of AAC (Big Mack, Twin Talk, and Eye-gaze) to participate in a classroom activity 

Speech Language Pathologist Colleen and student Ryder are using a Tobii Dynavox eye gaze device to comment during a story 

I find it difficult to believe that the R-word has resurfaced after years when its use would have been a red flag. Recently, it has “popped up” in discussions by various celebrities and on some platforms.  I feel that this development brings with it far-reaching consequences for individuals with disabilities and perpetuates stereotypes thereby undermining their dignity. 

The ‘R-Word’: A Historical Perspective 

Originally used in clinical settings to describe developmental disabilities, the ‘R-word’ gradually evolved into a term of ridicule and insult. Recognizing its harmful impact, the word was replaced over time by more precise and respectful terms in professional and medical contexts. Despite these advancements, its renewed usage today reveals ongoing challenges in fostering inclusive and respectful communication. 

Implications of Its Revival 

The reappearance of the ‘R-word’ carries serious implications. It reinforces harmful stereotypes and systemic discrimination against individuals with intellectual and developmental disabilities, often acting as a barrier to inclusion and equality. Moreover, normalizing such language risks desensitizing society to the weight of offensive terms, potentially paving the way for other slurs to re-enter mainstream conversation. In this context, language becomes a powerful tool—one that can either uplift or harm. 

Strategies to Address Harmful Language 

1. Raising Awareness 

Education is key to addressing the use of the ‘R-word.’ Many individuals may not fully grasp its offensive nature or the harm it causes. Schools, workplaces, and community organizations should lead discussions about the historical context of language and its impact on society. Sharing personal stories from those affected can help build empathy and understanding. 

2. Encouraging Respectful Alternatives 

Intellectual disability or developmental delay are terms that reflect respect and accuracy. Everyday conversations should avoid generalizations or derogatory expressions altogether. 

3. Confronting Usage 

If you hear the R-word, I suggest that you take a standby explaining calmly why it is inappropriate and suggesting better alternatives. Social media platforms also offer opportunities to challenge harmful language and advocate for change on a broader scale. 

4. Implementing Policies 

Organizations, schools, and workplaces should adopt clear policies prohibiting the use of offensive terms like the ‘R-word.’ Training sessions can help ensure everyone understands the importance of inclusive communication, supported by enforcement mechanisms to encourage compliance. 

5. Holding Media Accountable 

The media plays a central role in shaping societal norms. Advocacy efforts should focus on holding content creators, publishers, and influencers accountable when they use harmful language. Supporting inclusive media content can also help shift cultural attitudes over time. 

6. Utilizing Technology 

Technological tools, such as AI-driven moderation systems, can help filter and flag offensive language in online spaces. Continued investment in refining these tools can contribute to creating safer and more respectful digital environments. 

Conclusion 

The resurgence of the ‘R-word’ is a stark reminder of the profound impact language can have on individuals and society. Its usage is not merely a matter of words—it affects lives, perpetuates discrimination, and hinders progress toward equality. By raising awareness, promoting respectful alternatives, challenging harmful usage, and leveraging policies and technology, we can collectively work to eliminate offensive terms from our discourse. 

As we strive for progress, let us remember that language reflects our values and shapes the communities we build. Through intentional and united efforts, we can create a world where words are tools for empowerment, not harm, fostering inclusivity and respect for all. 

We’re celebrating Staff Appreciation Week at the Elizabeth Lee Black School from May 5-9, and we’re featuring a wide variety of activities. Educators, administrators, nurses, and support staff play critical roles in shaping the lives and futures of students, and their performance and morale are directly influenced by the recognition and encouragement they receive. 

Why is positive reinforcement critical to the engagement of our staff? 

Boosting Morale and Motivation 

Positive reinforcement, such as praise, recognition, or tangible rewards, serves as a powerful tool for boosting staff morale. As the challenges staff face on a daily basis can be overwhelming, consistent acknowledgment of their efforts can help them remain motivated and engaged. Staff   who feel appreciated for their hard work are more likely to foster creativity and enthusiasm in the classroom. 

Encouraging Excellence 

Recognizing achievements and milestones encourages staff to pursue excellence in their roles. Whether it’s a teacher implementing an innovative teaching method or a housekeeper ensuring a clean and safe environment for students, reinforcement highlights the value of their contributions and inspires them to continue their efforts. 

Building a Positive Culture 

In schools, positive reinforcement contributes to creating a thriving culture of collaboration and mutual respect. When staff feel valued, they are more likely to work together harmoniously, fostering an environment where students, educators, and administration can thrive. 

Improving Retention Rates 

Satisfied and appreciated employees are less likely to leave their positions. Positive reinforcement has been shown to improve staff retention rates, which is vital for maintaining consistency and quality in education. 

Enhancing Student Experiences 

When educators and staff are motivated and supported, students benefit directly. Positive reinforcement helps teachers bring their best to the classroom, creating engaging and effective learning experiences. Moreover, a happy and valued staff contributes to a nurturing school environment that supports every child’s growth. 

In conclusion, positive reinforcement in school settings is not merely about rewarding individual achievements; it is a strategy for cultivating a vibrant, supportive, and high-performing educational community. By celebrating the contributions of staff members, schools can create a foundation for success that benefits everyone involved. 

As graduation approaches, many families begin to consider the next steps for their son or daughter with intellectual disabilities. The transition from school to adult services can be challenging, but the Barber National Institute is here to help. 

We are excited to invite parents, students, teachers, transition coordinators, and support coordinators to our Intellectual Disabilities Services Open House on Friday, May 2, from 9:30 to 11:30 A.M. at our main campus located at 100 Barber Place, Erie. 

This informational session will provide valuable insights into the adult day programs, funding and the referral process available at Barber National Institute. Attendees will have the opportunity to tour our adult training facilities and speak directly with our knowledgeable staff and individuals.  

Whether you’re looking for day programs that offer engaging activities or skill development, our open house is the perfect opportunity to explore the possibilities. 

Don’t miss out on this chance to learn more about the services we offer and how we can support your son or daughter’s transition to adulthood. Please RSVP by Tuesday, April 29, to Elizabeth Gill at ElizabethGill@barberni.org or call 814-878-4030. 

We are here to help your son or daughter have a smooth and positive transition.  

Each September for the last 11 years, the Barber National Institute hosts the Beast on the Bay, a rigorous 10-mile course with 30 obstacles that challenge even the most skilled athletes. 

While many are gearing up for the Beast, which is several months away, the Mini-Beast is in full swing this week. You might be wondering, “What exactly is the Mini-Beast?” It’s an opportunity for Elizabeth Lee Black School students to hop, jump, skip, toss, and push their way through unique and fun obstacles at their own pace. 

After all, everyone deserves the chance to Beat the Beast! 

The Mini-Beast features a variety of activities that are accessible to all students and provide a high level of engagement. Brent Manti, our school’s physical education teacher, has been instrumental in creating an inclusive physical education program that supports each student’s development. 

Thanks to the Emergency Assistance for Non-Public Schools (EANS) Grant, the Elizabeth Lee Black School acquired the Lü Interactive Playground. This innovative system transforms traditional school environments into immersive and interactive spaces using a wide range of applications combined with world-class audiovisual equipment. The Lü Interactive Playground will certainly add an extra level of engagement to this year’s Mini-Beast!  

Rest assured that while the Beast on the Bay is ending, the adapted course will continue on as an annual event. I want to extend a very special thanks to those who participated in the Beast on the Bay since its inception as well as the countless volunteers and supporters who made this epic event happen.  

Learn more about the 12^th and Final annual Barber Beast on the Bay taking place on September 6 by visiting www.barberbeast.org.  

In a bold and unprecedented move, Health and Human Services Secretary Robert F. Kennedy Jr. has announced a comprehensive initiative aimed at uncovering the cause of autism by September 2025. This ambitious endeavor, described as a “massive testing and research effort,” will mobilize hundreds of scientists and researchers to delve into the complexities of autism spectrum disorders. This week, the Centers for Disease Control and Prevention reported that 1 in 31 children in the U.S. are diagnosed with autism spectrum disorder by their 8th birthday. In 2000, the rate was 1 in 150, and in 2024 autism spectrum disorder affected 1 in 36 children.  

Kennedy’s approach is driven by a sense of urgency and a commitment to addressing the rising rates of autism diagnoses. Despite decades of research, the exact cause of autism remains elusive, with genetic factors and various environmental influences being considered potential contributors. Kennedy’s initiative seeks to bring fresh perspectives and innovative methodologies to the forefront, hoping to achieve breakthroughs that have so far been out of reach.  

You may be asking, “hasn’t this already been done?” Yes, it has.  There are more than two dozen studies that have looked at the MMR vaccine and autism and have not found a link.  These include a massive 2019 study in the Annals of Internal Medicine, which looked at more than 600,000 children in Denmark. These studies have been done in different styles and in different countries. All have reached the same conclusion. Scientists tell us that genetics plays the dominant role-both inherited traits and spontaneous mutations in early conception. Kennedy recently doubled down on Fox News, claiming that previous vaccine safety studies were insufficient.  

“We’re going to look at facts,” he said. “We’re going to look at everything. Everything is on the table: our food system, our water, our air, different ways of parenting, all the kind of changes that may have triggered this epidemic.”  

Many in the autism community are concerned that Mr. Kennedy, a longtime vaccine critic, who has promoted the discredited theory that routine childhood vaccinations cause autism, is now leading Health and Human Services. It’s worth reminding everyone that not too long ago, the theory of “refrigerator moms” was believed to be the cause of autism. Is Mr. Kennedy now suggesting that different ways of parenting could cause autism?  We can be sure that there will be more to come on this issue.